Race for 7: Race for 7 is an awareness run organized by Organization For Rare Disease India (ORDI) – a team committed to address the challenges of rare disease patients and their families in India. Race for 7 is a large-scale nation-wide Awareness Campaign organized by Organization for Rare Disease India (ORDI) in line with Read more >
Find out more »The division of genetics at NYC Health + Hospitals (Metropolitan Hospital Center) is proudly hosting our fourth annual Rare Disease Day event on February 27, 2020. The primary objectives of this event are to raise awareness of rare disease amongst hospital medical staff, health care providers, and policy makers.
Find out more »Colorado Rare Disease Day 2020 Presented by Colorado Rare Action Network and Colorado Rare Thursday, February 27, 2020 from 8:30am-2:00pm Colorado State Capitol Building, 2nd Floor West Foyer 200 E Colfax Ave, Denver, CO 80203. patients, families, caregivers, medical professionals and industry representatives at this important event to educate Colorado legislators on the challenges rare Read more >
Find out more »Thursday, February 27, 2020 from 9:00am – 2:00pm Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event. A resolution acknowledging Rare Disease Day Read more >
Find out more »Ohio Rare Disease Day 2020 Thursday, February 27, 2020 at 10:00a.m. Registration opens at 9:00a.m. Harrington Discovery Institute University Hospitals 11407 Euclid Avenue, Floor 2, Cleveland, Ohio, 44106 There is no cost to participants to attend this event. Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss the Read more >
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World Rare Disease Day Symposium will be held on February 27, 2020. This symposium will be organized by two student communities from Biruni University: Molecular Biology and Genetics Student Community and Brain Research Students Community. The symposium will include presentations from both expert professors and undergraduate students and video demonstrations about rare diseases. It will Read more >
Find out more »February 27, 2020 from 10:30am-2:00pm Kentucky State Capitol, 700 Capitol Avenue SW, Frankfort, KY 40601 Please join Kentucky Rare Action Network patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of Read more >
Find out more »Syneos Health will be hosting our 2nd Annual Rare Disease Day Symposium on Thursday 27th February from 11am to 3pm at the Syneos Health Corporate Headquarters in Morrisville, NC. This year join representatives from the FDA, NC Rare Disease Innovation Institute, Patient Advocates, Duke University Medical Center, as well as leading biotech and investment firms Read more >
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Join us for a Genetics Pop-Up honoring #RareDiseaseDay2020! What is a genetics pop-up you might ask? A Genetics Pop-up is a gathering, held in the local community (Sheridan, WY), spearheaded by a genetic ambassador (Kenneth), to share genetic resources with families and those who work with families impacted by genetic conditions. The Mountain States Regional Read more >
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