Student Body President Emma Southard, with the Student Government Association (SGA), will lead students and faculty members in a "Color Wars for Rare." 6th grade students are challenged to wear neon colors to honor the Rare Disease Day logo. 7th grade students are challenged to wear orange and blue to honor the logo colors of Read more >
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Schools across the country have been challenged to #stripeoutyourschool by #showyourstripes on Friday, February 28th by social media influencer Mark Anastasio. The challenge was created in memory of Tyler Cummings who lost his courageous battle to a Juvenile form of ALS this past summer. Mark and Tyler's family hope to bring awareness to Rare Disease Read more >
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Students and faculty at Mill Creek Middle School in Dexter, MI will be participating in fun activities and learning opportunities that highlight the experiences of those in our school and local community that are living with rare diseases. There are several children who attend Mill Creek living with rare and ultra rare disorders. Themes of Read more >
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Race for 7: Race for 7 is an awareness run organized by Organization For Rare Disease India (ORDI) – a team committed to address the challenges of rare disease patients and their families in India. Race for 7 is a large-scale nation-wide Awareness Campaign organized by Organization for Rare Disease India (ORDI) in line with Read more >
Find out more »NORD Connecticut Rare Action Network Rare Disease Day 2020 Friday, February 28, 2020 at 8:00a.m. -10:30a.m. Connecticut State Legislative Office Building, 300 Capitol Avenue, Hartford, CT Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can Read more >
Find out more »The Rare Disease Treatment Approval Process: Balancing Gold Standard Evidence with Patient-Centered Flexibility Friday, February 28, 2020 from 9:00 a.m. – 2:30 p.m. McNamara Alumni Center, 200 SE Oak St, Minneapolis, MN 55455 Keynote: Sarah Wicks, JD, MPH Sarah Wicks is an associate at Hyman, Phelps & McNamara, P.C. where she works with sponsors to Read more >
Find out more »Friday, February 28, 2020 from 9:30am – 12:30pm Omni Parker House, 60 School Street, Boston, MA 02108 The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. Read more >
Find out more »Celebrate Rare Disease Day with the University of Florida! There will be a poster session regarding rare disease research, advocacy groups, and food and games! Anyone is welcome to join!
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Pledge4Rare Rare Disease Day 5K Run and 1 Mile Walk on Boston Common For the fourth consecutive year, Sanofi Genzyme invites the Mass biotech community to join in a Rare Disease Day 5K Run/1 Mile Walk on the Boston Common. The Run/Walk starts shortly after the close of and just a quick walk from the Read more >
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Rare Disease Day is a global event that serves to raise awareness of over 7,000 identified rare diseases. Although each disease on its own is rare, together they affect approximately 1 in 10 Americans. Since 2015, the Frank H. Netter MD School of Medicine at Quinnipiac University has hosted Rare Disease Day, providing an opportunity Read more >
Find out more »Friday, February 28, 2020 at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families Read more >
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Join us for a Genetics Pop-Up honoring #RareDiseaseDay2020! What is a genetics pop-up you might ask? A Genetics Pop-up is a gathering, held in the local community (Riverton, WY), spearheaded by a genetic ambassador (Melody), to share genetic resources with families and those who work with families impacted by genetic conditions. The Mountain States Regional Read more >
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