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Events for February 29, 2020

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Rare Disease Day 2020

February 29

Each year on the last day of February, the rare disease community comes together to raise awareness for the 25-30 million Americans impacted by rare diseases. Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and Read more >

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Boler Parseghian Center for Rare and Neglected Diseases Rare Disease Conference

February 29
University of Notre Dame, 1399 N Notre Dame Ave
Notre Dame, IN 46556-4627 United States
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11th Annual Conference on Advancing Rare Disease Research, Therapy and Patient Advocacy

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Run for the Rare

February 29

Run for the Rare! Did you know that Rare is everywhere! So, let’s run everywhere! Join us for a virtual race as we run and walk on Rare Disease Day. Run any distance, any where, at any time. Show your support by posting to social media at #runfortherare2020. JOIN LOCALLY Salem Riverfront City Park 290 Read more >

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Rare Disease Day – Alpha-1 Organization

February 29
Pair of Dice, 105 W. Kunz St
Columbia, Illinois 62236
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Collecting donations for the Alpha-1 organization. We will have attendance prizes all day. Please bring your favorite appetizer!

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Ongoing

Racefor7

February 23 @ 6:30 am - March 23 @ 12:00 pm
St. Joseph’s Indian High School ( Besides Mallya Hospital), St. Joseph’s Indian High School ( Besides Mallya Hospital)
BENGALURU, KARNATAKA India
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Race for 7: Race for 7 is an awareness run organized by Organization For Rare Disease India (ORDI) – a team committed to address the challenges of rare disease patients and their families in India. Race for 7 is a large-scale nation-wide Awareness Campaign organized by Organization for Rare Disease India (ORDI) in line with Read more >

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8:00 am

Race for Ryland 5K

February 29 @ 8:00 am - 11:00 am

Race for Ryland 5K Lace up your shoes and come run (walk) with us in to help raise awareness for rare diseases/disorders and honor our Rare Warrior Ryland Grace, born with Pyruvate Dehydrogenase Complex, on the rarest day of the year. February 29, 2020 at Walker Ranch Heritage Park, 12603 West Avenue, San Antonio Texas Read more >

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9:00 am

Genetics Pop-Up – Aurora, CO

February 29 @ 9:00 am - 11:00 am
Children’s Hospital Colorado, 13123 East 16th Ave,
Aurora, CO 80045 United States
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Please join us for a Genetics Pop-Up honoring #RareDiseaseDay2020! What is a genetics pop-up you might ask? A Genetics Pop-up is a gathering, held in the local community (Aurora, CO), spearheaded by a genetic ambassador (Brittany), to share genetic resources with families and those who work with families impacted by genetic conditions. The Mountain States Read more >

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10:00 am

Tucson, Arizona Rare Disease Day 2020

February 29 @ 10:00 am - 2:00 pm
Tucson Children’s Museum, 200 S 6th Ave
Tucson, AZ 85701 United States
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Tucson, Arizona Rare Disease Day Saturday, February 29, 2020 Brought to you by MECP2 Duplication Foundation and Arizona Rare Action Network Tuscon Children’s Museum, 200 S 6th Ave, Tucson, AZ 85701 Join patients, families, caregivers and all rare disease stake holders at this fun family friendly event to learn about the challenges rare disease patients Read more >

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Rare Disease Day Tucson

February 29 @ 10:00 am - 2:00 pm
children’s museum Tucson, 200 S 6th Ave
Tucson, AZ 85701 United States
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Rare Disease Day Tucson is an event held in Southern Arizona aiming to build community, provide advocacy, an share resources surrounding rare diseases & disorders. Come join us from 10am - 2pm at the Children's Museum Tucson on Saturday, February 29th and take part in entertainment, games, a rare resource fair, and stay for free Read more >

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Genetics Pop-Up – Tucson, AZ

February 29 @ 10:00 am - 2:00 pm
children’s museum Tucson, 200 S 6th Ave
Tucson, AZ 85701 United States
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Please join us for a Genetics Pop-Up honoring #RareDiseaseDay2020! What is a genetics pop-up you might ask? A Genetics Pop-up is a gathering, held in the local community (Tucson, AZ), spearheaded by a genetic ambassador (Melinda), to share genetic resources with families and those who work with families impacted by genetic conditions. The Mountain States Read more >

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10:30 am

Texas Rare Disease Day 2020

February 29 @ 10:30 am - 2:00 pm
Sugar Land Town Square, Highway 6 and U.S. 59
Sugar Land, TX 77479 United States
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JOIN US TO RAISE RARE DISEASE AWARENESS Saturday, February 29, 2020 10:30 a.m. – 2 p.m. Sugar Land Town Square Located at Highway 6 and U.S. 59, Sugar Land, TX 77479 Family Friendly Event with Live Music, Games & More According to the National Institutes of Health (NIH), a disease is rare if it affects Read more >

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11:00 am

Rare Disease Day: Mission 2020

February 29 @ 11:00 am - 2:00 pm
International Spy Museum, International Spy Museum 700 L'Enfant Plaza, SW
Washington, DC 20024 United States
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Rare Disease Day: Mission 2020 will be a day of family fun and intrigue at the International Spy Museum, one of DC's newest family-friendly, accessible-to-all museums. NORD will be hosting activities and lunch for folks living with rare diseases, their families and other rare community supporters! Everyone is welcome. What will the mission at the International Read more >

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New Hampshire Rare Disease Day Luncheon at the Common Man Restaurant 

February 29 @ 11:00 am - 2:00 pm
Common Man Restaurant, 25 Water Street
Concord, NH 03301 United States
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Rare Disease Day Lunch at the Common Man Restaurant  Saturday, February 29, 2020 from 11:00am-2:00pm The Common Man Restaurant, 25 Water St, Concord, NH 03301 There is no cost to participants to attend this event. Please join us for lunch and connect with other patients, families, caregivers, medical professionals, industry representatives and state legislators at Read more >

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Oklahoma Rare Disease Day 2020

February 29 @ 11:00 am - 2:00 pm
Oklahoma Science Museum, 2020 Remington Pl
Oklahoma City, OK 73111 United States
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Saturday, February 29, 2020 from 11:00am – 2:30pm  Science Museum of Oklahoma, 2020 Remington Pl, Oklahoma City, OK Join us at the Science Museum of Oklahoma on the Rarest Day of the Year (February 29th) to celebrate people with rare disorders and advocate on their behalf at Rare Disease Day 2020. Rare Disease Day is Read more >

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Rare Disease Day: Mission 2020

February 29 @ 11:00 am - 2:00 pm
International Spy Museum International Spy Museum 700 L'Enfant Plaza, SW
Washington, DC 20024 United States
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Rare Disease Day: Mission 2020 will be a day of family fun and intrigue at the International Spy Museum, one of DC’s newest family-friendly, accessible-to-all museums. NORD will be hosting activities and lunch for folks living with rare diseases, their families and other rare community supporters! Everyone is welcome. What will the mission at the Read more >

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12:00 pm

Wisconsin Rare Disease Day 2020

February 29 @ 12:00 pm - 3:00 pm
Gardner Room at the Wehr Nature Center, 9701 W. College Avenue WI 53132 United States + Google Map

Wisconsin Rare Disease Day 2020 Saturday, February 29, 2020 from 12:00pm-3:00pm Gardner Room” at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132 There is no cost to participants to attend this event. Wisconsin Rare Action Network invites you to join patients, families, caregivers, medical professionals and industry representatives at this important event Read more >

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12:30 pm

The BLINDFOLD FOOD TASTE DATE

February 29 @ 12:30 pm - 3:30 pm

Through research & education in science but commitment & passion in advocacy, we advance collaborations that have a positive effect on the patients...

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1:00 pm

Arkansas Rare Disease Day 2020

February 29 @ 1:00 pm - 4:00 pm
Arkansas College of Osteopathic Medicine, 7000 Chad Colley Blvd
Fort Smith, AR 72916 United States
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Arkansas Rare Action Network Rare Disease Day Saturday, February 29, 2020 Arkansas College of Osteopathic Medicine,  7000 Chad Colley Blvd, Fort Smith, AR 72916 Please join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face and learn how you can make a difference Read more >

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1:30 pm

Paint~N~Social

February 29 @ 1:30 pm - 4:30 pm
Sip~N~Strokes, 230 Hammond Drive Building 402
Sandy Springs, GA 30328 United States
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1 in 100,000 can feel like such a lonely number, especially when you go your whole life without ever meeting anyone else with the same condition as you. That all changed with the group 'Living with Holt-Oram Syndrome' on Facebook in 2012, which connected hundreds of people who had been diagnosed with this syndrome. Who Read more >

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2:00 pm

Rare Disease Day San Jose

February 29 @ 2:00 pm - 6:00 pm
The Get Down, 198 Jackson St.
San Jose, CA 95112 United States
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Please join us as we come together as a community to raise awareness for Rare Disease Day 2020. There are many people living with a rare disease but their voices are rarely heard. Rare Disease Day where patients, family, friends,and policy makers, can come together and raise awareness and make sure our voices are heard. Read more >

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3:00 pm

Rare Disease Day NYC

February 29 @ 3:00 pm - 7:00 pm
Carnegie Hall, 881 7th Ave
New York, NY 10019 United States
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Rocket Pharmaceutical’s Rare Disease Day event aims to provide all who attend an opportunity to learn more about rare disease and the need for new treatment options. The event will highlight patient artists who raise awareness of their disease through their artwork. At the event, patient panelists will share their personal experiences with rare disease, Read more >

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5:30 pm

Rock The Causebah Concert Fundraiser in Austin, Texas

February 29 @ 5:30 pm - 11:00 pm
The North Door, 501 Brushy Street
Austin, TX 78702 United States
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$10

ROCK THE CAUSEBAH Fundraiser Concert for Rare Diseases February 29, 2020 from 5:30pm-11:00pm The North Door, 501 Brushy Street, Austin, Texas 78702 Live music, food, and an auction of amazing prizes from 5:30pm – 11pm. All ages are welcome and $10 at the door!  Proceeds to benefit the National Organization for Rare Disorders and the Read more >

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7:00 pm

Be Fierce Glow Gala

February 29 @ 7:00 pm - 10:00 pm
The DoSeum (San Antonio Children’s Museum), 2800 Broadway Street
San Antonio, 78209 United States
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see-website-for-details

Let’s Glow! Join Be Fierce Foundation for a one-of-a-kind blacklight family-friendly party to help bring awareness to kids and families battling rare diseases. Feb. 29, 2020 is Rare Disease Day, so we’re going big for FIERCE kids! Wear white…neon…or anything that glows as we rock The DoSeum. Snacks, sweets and activities will be planned throughout Read more >

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