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Events for June 25, 2020

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United Leukodystrophy Foundation Virtual Family Conference

June 25 - June 27

The United Leukodystrophy Foundation's annual conference will be virtual this year on June 25 – 27. They are dedicated to providing quality educational content to the leukodystrophy community. Sign up online to register, It's free!

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Virtual Alpha-1 National Conference

June 25 - June 27

The Alpha-1 Foundation is excited to launch registration for our first Virtual Alpha-1 National Conference. This FREE online virtual event is scheduled for June 25-27, 2020 and will provide an exciting program over three days. More:

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2:00 pm

Crisis Communications: The Good, The Bad, The Ugly!

June 25 @ 2:00 pm - 3:00 pm

Rare disease nonprofit organizations deliver an invaluable service to the community -- especially during the COVID-19 pandemic. Nonprofits nationwide are grappling with communicating hope while balancing the harsh reality of the pandemic's impact on their members' health, emotions, and finances. Our keynote speaker is Michael Williams, Senior Consultant - Media Relations & Journalism, Board Veritas; Read more >

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