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Events for February 23, 2021

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Rare Liver Diseases Month

February 1 - February 28

In their mission to improve the lives of individuals and families impacted by liver disease, Global Liver Institute (GLI) is excited to announce February 2021 as the first annual Rare Liver Diseases Month. This year’s inaugural campaign, themed #RareAware, will feature communication, education, and advocacy efforts focused on rare liver diseases throughout the month of Read more >

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NORD Running for Rare Program

February 1 - December 31

Through the satellite program, runners from across the globe are invited to join NORD’s Charity Running Team in any race of their choosing – marathon, 5K, cycling, walking, climbing, or even an Iron Man, all while raising funds for rare diseases. Runners can choose to participate in an event solo or create a team. Based Read more >

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Ongoing

Zebra 5K Virtual Run

February 1 @ 8:00 am - February 27 @ 5:00 pm

Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's Hope. Run, walk, roll or stroll anywhere in the world, whether you are a local friend or a friend from far away! #showyourstripes The Zebra 5K specifically benefits the St. Jude Clinical Nutrition Department who Read more >

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Rare Disease Day 2021 at Vanessa Research

February 22 @ 8:00 am - February 28 @ 11:30 pm

We are proud to announce that we are an official Friend of Rare Disease Day. ❤ Rare Disease Day aims to raise awareness for rare diseases around the world. The long-term goal over the next decade is to improve access to treatment and medical representation for individuals with rare diseases and their families. Follow along Read more >

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9:00 am

Innovation in Rare Disease: Making Progress with Cell & Gene Therapies

February 23 @ 9:00 am - February 25 @ 10:15 am

This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on patients’ lives – and to shine a light on the opportunities for cell and gene therapies in treating these disorders. Join us for an inspiring program that brings together – over three days – patients and Read more >

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10:00 am

Ohio Rare Disease Day Virtual Event

February 23 @ 10:00 am - 12:00 pm

Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Ohio legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Ohio is currently in the legislative process Read more >

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West Virginia Rare Disease Day Virtual Event

February 23 @ 10:00 am - 11:30 am

West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate West Virginia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the West Virginia Rare Disease Advisory Read more >

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12:00 pm

North Carolina Rare Disease Day Virtual Event

February 23 @ 12:00 pm - 1:30 pm

North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate North Carolina legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the North Carolina Rare Disease Advisory Read more >

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14th Annual Rare Disease Day

February 23 @ 12:00 pm - 4:00 pm

Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare Disease Day. Collaborate, discuss, and learn about “Integrating Telehealth in Rare Disease”. Agenda Items include: Speakers from the rare disease community - Keynote Speaker : Dr. Bridget Ann Fernandez, MD, MS, FRCPC (Medical Genetics), Read more >

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3:00 pm

Rare Disease Day at Nationwide Children’s

February 23 @ 3:00 pm - 5:30 pm

Rare Disease Day at Nationwide Children's is part of a global observance to raise awareness of rare diseases and its impact on patients and families. Topics: Advocacy, Research, and Patient Care Cost: The event is free and open to the public, including patients, their families and caregivers, healthcare providers, research professionals, advocates, and stakeholders. Registration: Read more >

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5:00 pm

RARE DISEASE DAY EVENT 2021: RARE COMMUNITY

February 23 @ 5:00 pm - February 27 @ 5:00 pm

Calvin University, Michigan State University College of Human Medicine, and Spectrum Health Helen DeVos Children’s Hospital are pleased to announce our virtual Rare Disease Day 2021 event, February 23-27. This free, virtual event serves to unite patients, caregivers and families, medical professionals, researchers, advocates, and students around the common goal of understanding what it means Read more >

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Virtual Rare Disease Symposium

February 23 @ 5:00 pm - February 27 @ 1:00 pm
Free

Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening of the week will feature themed sessions on topics related to advocacy, education, and community. On Saturday morning there will be multiple sessions as well as opportunities to explores organizations that support the rare disease Read more >

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