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Events for February 25, 2021

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Rare Liver Diseases Month

February 1 - February 28

In their mission to improve the lives of individuals and families impacted by liver disease, Global Liver Institute (GLI) is excited to announce February 2021 as the first annual Rare Liver Diseases Month. This year’s inaugural campaign, themed #RareAware, will feature communication, education, and advocacy efforts focused on rare liver diseases throughout the month of Read more >

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NORD Running for Rare Program

February 1 - December 31

Through the satellite program, runners from across the globe are invited to join NORD’s Charity Running Team in any race of their choosing – marathon, 5K, cycling, walking, climbing, or even an Iron Man, all while raising funds for rare diseases. Runners can choose to participate in an event solo or create a team. Based Read more >

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Ongoing

Zebra 5K Virtual Run

February 1 @ 8:00 am - February 27 @ 5:00 pm

Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's Hope. Run, walk, roll or stroll anywhere in the world, whether you are a local friend or a friend from far away! #showyourstripes The Zebra 5K specifically benefits the St. Jude Clinical Nutrition Department who Read more >

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Rare Disease Day 2021 at Vanessa Research

February 22 @ 8:00 am - February 28 @ 11:30 pm

We are proud to announce that we are an official Friend of Rare Disease Day. ❤ Rare Disease Day aims to raise awareness for rare diseases around the world. The long-term goal over the next decade is to improve access to treatment and medical representation for individuals with rare diseases and their families. Follow along Read more >

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Innovation in Rare Disease: Making Progress with Cell & Gene Therapies

February 23 @ 9:00 am - February 25 @ 10:15 am

This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on patients’ lives – and to shine a light on the opportunities for cell and gene therapies in treating these disorders. Join us for an inspiring program that brings together – over three days – patients and Read more >

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RARE DISEASE DAY EVENT 2021: RARE COMMUNITY

February 23 @ 5:00 pm - February 27 @ 5:00 pm

Calvin University, Michigan State University College of Human Medicine, and Spectrum Health Helen DeVos Children’s Hospital are pleased to announce our virtual Rare Disease Day 2021 event, February 23-27. This free, virtual event serves to unite patients, caregivers and families, medical professionals, researchers, advocates, and students around the common goal of understanding what it means Read more >

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Virtual Rare Disease Symposium

February 23 @ 5:00 pm - February 27 @ 1:00 pm
Free

Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening of the week will feature themed sessions on topics related to advocacy, education, and community. On Saturday morning there will be multiple sessions as well as opportunities to explores organizations that support the rare disease Read more >

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The Orphan Disease Center 10th Anniversary Virtual Symposium: A New Era of Rare Disease Diagnostics and Therapeutics

February 24 @ 10:00 am - February 25 @ 3:00 pm

Penn’s Orphan Disease Center (ODC) is the first of its kind, a program dedicated to identifying promising therapies for oft-overlooked disorders and providing access to those therapies for patients of all populations. Led by world-renowned gene therapy pioneer Jim Wilson, the ODC has a track record of accelerating progress across a number of arenas, including Read more >

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8:00 am

GIORNATA VIRTUALE AIIAO – MALATTIE E TUMORI RARI

February 25 @ 8:00 am - 5:00 pm
firenze, via kyoto,51
firenze, 50126 Jamaica
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Hello we are AIIAO (Italian Association of Cancer Area Nurses), on the 28th we will make posts on our social networks to raise awareness of rare diseases and tumors. celebRARE significa + ricerca + assistenza + risorse per farmaci orfani

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12:00 pm

Wisconsin Virtual Rare Disease Day

February 25 @ 12:00 pm - 1:30 pm

Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Wisconsin legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could Read more >

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2:00 pm

Oklahoma Rare Disease Day Virtual Event

February 25 @ 2:00 pm - 3:30 pm

Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Oklahoma legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could Read more >

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Advancing Health Equity: A Community Conversation for Rare Disease Day

February 25 @ 2:00 pm - 3:00 pm

People with rare diseases often have limited access to diagnosis, treatment and care. The disparities can be even greater for people from underrepresented racial, ethnic or other minority groups. During this special Rare Disease Day event, two patient organization leaders, a medical professional and a medical student will discuss current initiatives and possible approaches to advancing health equity. Read more >

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5:00 pm

Rare Disease Day with North Carolina State University (NCSU), University of North Carolina-Chapel Hill (UNC), the Wake Forest School of Medicine, and Obra D. Tompkins High School

February 25 @ 5:00 pm - 7:00 pm

Join Students for Rare at NC State University, Wake Forest Medical school, UNC-Chapel Hill and Tompkins High school on February 25, 2021 at 6pm EST for our Rare Disease Day virtual event. We have speakers from all three universities sharing their expertise on rare disorders. What is RDD? Rare Disease Day is a day solely Read more >

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6:30 pm

New York Rare Disease Day Virtual Event

February 25 @ 6:30 pm - 8:00 pm

New York Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New York legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the New York Rare Disease Advisory Read more >

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