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Events for February 27, 2021

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Rare Liver Diseases Month

February 1 - February 28

In their mission to improve the lives of individuals and families impacted by liver disease, Global Liver Institute (GLI) is excited to announce February 2021 as the first annual Rare Liver Diseases Month. This year’s inaugural campaign, themed #RareAware, will feature communication, education, and advocacy efforts focused on rare liver diseases throughout the month of Read more >

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NORD Running for Rare Program

February 1 - December 31

Through the satellite program, runners from across the globe are invited to join NORD’s Charity Running Team in any race of their choosing – marathon, 5K, cycling, walking, climbing, or even an Iron Man, all while raising funds for rare diseases. Runners can choose to participate in an event solo or create a team. Based Read more >

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Ongoing

Zebra 5K Virtual Run

February 1 @ 8:00 am - February 27 @ 5:00 pm

Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's Hope. Run, walk, roll or stroll anywhere in the world, whether you are a local friend or a friend from far away! #showyourstripes The Zebra 5K specifically benefits the St. Jude Clinical Nutrition Department who Read more >

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Rare Disease Day 2021 at Vanessa Research

February 22 @ 8:00 am - February 28 @ 11:30 pm

We are proud to announce that we are an official Friend of Rare Disease Day. ❤ Rare Disease Day aims to raise awareness for rare diseases around the world. The long-term goal over the next decade is to improve access to treatment and medical representation for individuals with rare diseases and their families. Follow along Read more >

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RARE DISEASE DAY EVENT 2021: RARE COMMUNITY

February 23 @ 5:00 pm - February 27 @ 5:00 pm

Calvin University, Michigan State University College of Human Medicine, and Spectrum Health Helen DeVos Children’s Hospital are pleased to announce our virtual Rare Disease Day 2021 event, February 23-27. This free, virtual event serves to unite patients, caregivers and families, medical professionals, researchers, advocates, and students around the common goal of understanding what it means Read more >

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Virtual Rare Disease Symposium

February 23 @ 5:00 pm - February 27 @ 1:00 pm
Free

Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening of the week will feature themed sessions on topics related to advocacy, education, and community. On Saturday morning there will be multiple sessions as well as opportunities to explores organizations that support the rare disease Read more >

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8:00 am

Rare Disease Day Bay Area

February 27 @ 8:00 am - March 1 @ 8:00 am

Rare Disease Bay Area will be celebrating its 3 year anniversary this year. We will be hosting this years event online and will feature 2-day live-stream festival featuring over 30 DJ's from the UK, Canada, NYC, Chicago, Las Vegas, Los Angeles, and the Bay Area. We also will have dance and music performances, wellness workshops Read more >

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9:00 am

Frank H. Netter School of Medicine Rare Disease Day Symposium

February 27 @ 9:00 am - 3:00 pm
Frank H Netter MD School of Medicine-Quinnipiac University, 370 Bassett Road
North Haven, CT United States
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Rare Disease Day is a global event that serves to raise awareness of over 7,000 identified rare diseases. Although each disease on its own is rare, together they affect approximately 1 in 10 Americans. Since 2015, the Frank H. Netter MD School of Medicine at Quinnipiac University has hosted the Rare Disease Day Symposium, providing Read more >

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Rare Disease Day at Frank H. Netter School of Medicine

February 27 @ 9:00 am - 3:00 pm

Rare Disease Day is a global event that serves to raise awareness of over 7,000 identified rare diseases. Although each disease on its own is rare, together they affect approximately 1 in 10 Americans. Since 2015, the Frank H. Netter MD School of Medicine at Quinnipiac University has hosted the Rare Disease Day Symposium, providing Read more >

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Rare Disease Day Symposium

February 27 @ 9:00 am - 3:00 pm
Frank H Netter MD School of Medicine-Quinnipiac University, 370 Bassett Road
North Haven, CT United States
+ Google Map

The Rare Disease Day Symposium at Quinnipiac University provides an opportunity for patients, family members and researchers to share their stories, their research and insight into the development of novel therapeutics. Our mission is to promote inter-professional healthcare education and awareness and advocacy for the rare disease community with an event that has also become Read more >

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10:00 am

Arkansas Rare Disease Day Virtual Event

February 27 @ 10:00 am - 11:30 am

Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Arkansas legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Arkansas is currently in the legislative process Read more >

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Phelan Lucky February Virtual Run

February 27 @ 10:00 am - February 28 @ 10:00 am

As part of the Mum Runner February Virtusl Run, I am running 5km every hour for 24 hours raising money for Phelan McDermid Syndrome Foundation Australia. There are different levels and you can run or walk. Pop over to the Mum Runner page. https://mumrunner.com/product/phelan-lucky-february-virtual-run/

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10:30 am

University of Michigan Virtual Rare Disease Day Event

February 27 @ 10:30 am - 2:30 pm

We invite you to join Michigan Medicine and the University of Michigan NORD Students for Rare in a 3-day virtual event recognizing Rare Disease Day. The event will highlight patient stories, caregiver stories, and research findings in the fields of Metabolism and Immunology. We hope to see you there!

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1:00 pm

Sarcoidosis Wellness Series: Effective and Empathetic Communication

February 27 @ 1:00 pm - 2:30 pm

Do you struggle to find the words to communicate with others? Do you wish you could be more assertive, but are worried about coming off as “mean” or “cold”? Do you struggle to set your boundaries on days when you feel tired or overwhelmed? Then this is the workshop for you! Join us as we Read more >

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2:00 pm

BioNews #WhatMakesMeRare Virtual Event

February 27 @ 2:00 pm - 3:30 pm

To mark Rare Disease Month, BioNews Services invites those in the rare disease community — whether you are a patient, caregiver, healthcare worker, researcher, or anyone else touched by a rare disease — to participate in our first live virtual event, focused on open and honest conversation about mental health, resilience, and self-care. Inspired by Read more >

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3:00 pm

Louisiana Rare Disease Day Virtual Event

February 27 @ 3:00 pm - 4:30 pm

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Louisiana legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could Read more >

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