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Events for April 21, 2021

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2:00 pm

Transitioning to Adult Care

April 21 @ 2:00 pm - 3:00 pm

As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models whereby they take ownership of their care. This change can seem daunting for patients and parents, especially when dealing with rare disorders that involve multiple specialists that may be part of a care team.  Join us Read more >

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