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Events for May 12, 2021

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1:00 pm

Advancing Research Through the Global PNH Patient Registry

May 12 @ 1:00 pm - 2:00 pm

The Global PNH Patient Registry is a collaborative effort between the Aplastic Anemia and MDS International Foundation (AAMDSIF), industry sponsors and the National Organization for Rare Disorders (NORD) to study paroxysmal nocturnal hemoglobinuria (PNH). It supports research, provides insight on treatment for the PNH community and helps understand the progression of PNH over time. Join us for this webinar to Read more >

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6:00 pm

VHL Alliance in NYC

May 12 @ 6:00 pm - 8:00 pm

Join the VHL Alliance as they honor Nobel Laureate, Dr. Willilam G. Kaelin, Jr. at the Harvard Club of NYC. This event has been rescheduled for May 12, 2021. For more information and for ticket and sponsorship information, please visit:

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7:00 pm

VHL Alliance Warrior Call 2021

May 12 @ 7:00 pm - 9:00 pm

Warrior Call 2021 is a virtual gathering for VHLers to hear and explore the world of VHL research through the eyes of VHL researcher and Nobel laureate William G. Kaelin, Jr, MD. Dr. Kaelin’s research on the VHL gene earned his title as Nobel laureate in Medicine in 2019. This dynamic and interactive event will Read more >

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