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Events for May 22, 2021

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CurePSP Virtual Spring Family Conference

May 21 - May 22

The CurePSP Virtual Spring Family Conference is a two-day conference dedicated to learning management techniques for patients, caregivers, and families living with the neurodegenerative diseases PSP, CBD, and MSA. CurePSP encourages and organizes activities that foster communication, exchange of ideas and information, and interaction for people on this journey.

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3:00 pm

Inborn Errors of Metabolism Community Chat: Advocacy in Action

May 22 @ 3:00 pm - 4:30 pm

We'd like to invite you to learn about the Medical Nutrition Equity Act and Newborn Screening Saves Lives Act. Hear about the status of these bills, hear from a panel of advocates about their experiences, and learn about various ways to get involved in and take action -some only take less than a minute!

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