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Events for June 26, 2021

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Primary Immunodeficiency Conference

June 23 - June 26

This free four-day conference is the largest gathering of PI patients in the world, bringing together the entire PI community (patients, caregivers, and clinicians) for four days of connection, learning, and networking in a fully engaging virtual environment. Sessions from world-class immunologists, an entire day dedicated to youth programming, and compelling panel discussions are just Read more >

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United Leukodystrophy Foundation Family Conference

June 25 - June 26

The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. The Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics Read more >

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The Land of the Free, Home of the Brave, Family Conference

June 26 - June 27

HCU Network America and Organic Acidemia Association would like to announce The Land of the Free, Home of the Brave, Family Conference, June 26-27 in Bethesda, MD. The event will have joint and individual sessions, specific to each community. Visit:

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8:00 am

Living Rare, Living Stronger NORD Patient and Family Forum

June 26 @ 8:00 am - June 27 @ 5:00 pm

Join NORD for the Living Rare, Living Stronger NORD Patient and Family Forum, an interactive virtual event. Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases and opportunities to connect with each other, advocates and other stakeholders. This year's Forum will provide interactive Read more >

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10:00 am

CMTC-OVM Webinar: Dr. Albert Wolkerstorfer – Laser and Vascular Malformations

June 26 @ 10:00 am - 11:00 am

In this webinar organized by CMTC-OVM, Dr. Albert Wolkerstorfer is presenting about vascular malformations and laser treatment. Register here.

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1:00 pm

Pemphigus and Pemphigoid Mid Atlantic Virtual Support Group

June 26 @ 1:00 pm - 2:30 pm

Join the IPPF for the Virtual Mid Atlantic Support Group Meeting on Saturday, June 26th from 1-2:30 pm EST. Connect virtually with other patients and caregivers in the Mid Atlantic area. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it seems even harder. There’s something special about connecting with people Read more >

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