Scroll
To Top
Loading Events

Events for October 18, 2021

Events Search and Views Navigation

Event Views Navigation

All Day

Awareness for medical issues by Adrenal patients!

February 28, 2021 - December 31, 2021

Bijnierpatienten in Nederland en Europa ervaren vaak problemen, bij het tijdig en juist diagnositiceren van hun aandoeningen/ziekten.Door het platform: ENDO-ERN (European Reference Network on Rare Endocrine Conditions) is het mogelijk gemaakt, om de casuistieken van deze patienten op internationaal niveau te laten bespreken, samen met de beschikbare specialisten, binnen heel Europa. Samen bewustzijn (awareness) creeren voor de problematiek, waar Bijnierpatienten Read more >

Find out more »

Sällsynta dagen – Ta del av fakta, livsberättelser, intervjuer och musik, var du än är!

February 28, 2021 - February 28, 2022

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en orsaksdiagnos?Hur har 2020 års nobelpris för gensaxen CRISPR-Cas9 möjliggjort genterapi för svårt sjuka personer?Var kan man finna information och stöd när man möter en person med en sällsynt diagnos?Den sista februari varje år, i år Read more >

Find out more »

20 years of care for butterfly children

February 28, 2021 - December 31, 2021

On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech Republic. The centre was established in 2001 in Brno (the second largest city of Czech Republic) by Hana Bučková, MD - head of departement of childrens dermatology in University hospital Brno. Nowadays there are 30 medical Read more >

Find out more »

The Mast Cell Disease Society 24th National Conference

October 13, 2021 - October 20, 2021

The Mast Cell Disease Society's 24th National Conference will be held virtually October 13- 20, 2021 and consist of lay-person-focused medical presentations, panel discussions, workshops and support group activities with time for questions, and will incorporate breaks to allow for resting periods, and free time to allow for casual socializing through our virtual platform. This Read more >

Find out more »

8:00 am

Rare Diseases and Orphan Products Breakthrough Summit 2021

October 18, 2021 @ 8:00 am - October 19, 2021 @ 5:00 pm
Find out more »
+ Export Events