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Events for January 7, 2022

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Sällsynta dagen – Ta del av fakta, livsberättelser, intervjuer och musik, var du än är!

February 28, 2021 - February 28, 2022

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en orsaksdiagnos?Hur har 2020 års nobelpris för gensaxen CRISPR-Cas9 möjliggjort genterapi för svårt sjuka personer?Var kan man finna information och stöd när man möter en person med en sällsynt diagnos?Den sista februari varje år, i år Read more >

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Raras Com Ciência

November 15, 2021 - December 30, 2022
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SpectacuRARE Fest 2022

December 3, 2021 - February 28, 2022
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Vaincre la Cardiomyopathie et L’Insuffisance Cardiaque

December 6, 2021 - June 18, 2022
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Primer concurso de videos sobre Enfermedad Raras de la Península de Yucatan

December 13, 2021 - February 23, 2022
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Submit Your Art for Rare Disease Day 2022

January 7 - February 23

Submit Your Zebra Artwork by Feb. 23, 2022! This year for Rare Disease Day on Feb. 28th 2022, the FD Foundation would like to showcase your zebra artwork on our social media platforms, to raise awareness and generate positive action for the rare disease community. The #ShowYourStripes campaign takes its cue from the majestic zebra, Read more >

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12:00 pm

MitoAction Annual Town Hall Meeting

January 7 @ 12:00 pm - 2:00 pm

The MitoAction Annual Town Hall Meeting on Friday January 7th from 12-2 pm is kicking off the new year by sharing all that they have in store for the next 12 months! You will hear from organizations and companies around the globe that have special opportunities, programs and projects for patients and families affected by mitochondrial disease. You can register Read more >

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