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Events for February 8, 2022

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Sällsynta dagen – Ta del av fakta, livsberättelser, intervjuer och musik, var du än är!

February 28, 2021 - February 28, 2022

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en orsaksdiagnos?Hur har 2020 års nobelpris för gensaxen CRISPR-Cas9 möjliggjort genterapi för svårt sjuka personer?Var kan man finna information och stöd när man möter en person med en sällsynt diagnos?Den sista februari varje år, i år Read more >

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Raras Com Ciência

November 15, 2021 - December 30, 2022
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SpectacuRARE Fest 2022

December 3, 2021 - February 28, 2022
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Vaincre la Cardiomyopathie et L’Insuffisance Cardiaque

December 6, 2021 - June 18, 2022
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Primer concurso de videos sobre Enfermedad Raras de la Península de Yucatan

December 13, 2021 - February 23, 2022
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Submit Your Art for Rare Disease Day 2022

January 7 - February 23

Submit Your Zebra Artwork by Feb. 23, 2022! This year for Rare Disease Day on Feb. 28th 2022, the FD Foundation would like to showcase your zebra artwork on our social media platforms, to raise awareness and generate positive action for the rare disease community. The #ShowYourStripes campaign takes its cue from the majestic zebra, Read more >

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Rare Do Care Walk-Run-N-Roll

February 1 - February 28

Show that you DO care for rare, and celebrate Rare Disease Month with SRNA! Challenge yourself to go further by participating in our Rare Do Care Virtual Walk-Run-N-Roll. Between now and February 28, log your miles as you walk, run, or roll in your neighborhood. Invite your friends and family to join, no matter where Read more >

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Colorful palms!

February 1 - March 1
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Rare Disease Day Philadelphia 5k

February 5 - February 27
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7:00 pm

Barriers to Diagnosis: Women and X-linked Diseases Webinar

February 8 @ 7:00 pm - 8:00 pm

This webinar is designed for women with x-linked genetic diseases, healthcare providers, and caregivers and addresses the challenges women with X-linked diseases face. Challenges and barriers to diagnosis and care, as well as an explanation of women and manifestation of symptoms of X-linked diseases will be discussed. There will also be a time for Q&A Read more >

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