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Events for February 27, 2022

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Sällsynta dagen – Ta del av fakta, livsberättelser, intervjuer och musik, var du än är!

February 28, 2021 - February 28, 2022

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en orsaksdiagnos?Hur har 2020 års nobelpris för gensaxen CRISPR-Cas9 möjliggjort genterapi för svårt sjuka personer?Var kan man finna information och stöd när man möter en person med en sällsynt diagnos?Den sista februari varje år, i år Read more >

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Raras Com Ciência

November 15, 2021 - December 30, 2022
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SpectacuRARE Fest 2022

December 3, 2021 - February 28, 2022
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Vaincre la Cardiomyopathie et L’Insuffisance Cardiaque

December 6, 2021 - June 18, 2022
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Primer concurso de videos sobre Enfermedad Raras de la Península de Yucatan

December 13, 2021 - February 23, 2022
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Rare Do Care Walk-Run-N-Roll

February 1 - February 28

Show that you DO care for rare, and celebrate Rare Disease Month with SRNA! Challenge yourself to go further by participating in our Rare Do Care Virtual Walk-Run-N-Roll. Between now and February 28, log your miles as you walk, run, or roll in your neighborhood. Invite your friends and family to join, no matter where Read more >

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Colorful palms!

February 1 - March 1
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Rare Disease Day Philadelphia 5k

February 5 - February 27
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Serie de eventos Conmemoración Enfermedades Huérfanas 2022 -hATTR en Colombia la enfermedad de las mil caras

February 9 - March 2
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Raros Eu me Importo

February 16 - March 16
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Get Creative – Enter IDFA’s Rare Disease Day Competition

February 17 - February 28
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Grin for Wishes

February 19 - February 28
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“Se Ú[email protected] como [email protected]

February 21 - February 28
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Iluminación Cámara de Diputados 24-28 febrero 2022

February 24 - February 28
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University of Nottingham Illumination

February 25 - February 28
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Lights on Rare Disease – Lucca

February 25 - February 28
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Social Media Creatives

February 25 - March 1
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#RunForRaiden

February 26 - February 28
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Arnprior Ontario Shares Our Colours

February 26 - February 28
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Lights on Rare Disease – Trapani

February 27 - February 28
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Share Your Colours & Access to Rare Disease Medicine

February 27
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Conversation round

February 27
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Ongoing

Rutgers Rare Disease Day Chipotle Fundraiser

February 15 @ 5:00 pm - February 28 @ 9:00 pm

We are hosting a Chipotle fundraiser to raise money for NORD in honor of Rare Disease Day 2022, which is observed on Feb 28th. If you'd like to support rare diseases, come to the George Street Chipotle (387 George St, New Brunswick, NJ 08901) on 2/28 at 5-9 pm for dinner. 33% of the proceeds Read more >

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10:00 am

Peeper Pyper’s Party

February 27 @ 10:00 am - 12:30 pm

In honor of their daughter Pyper, the Stillman Family is hosting the first annual Peeper Pyper’s Party on February 27 to raise awareness for Familial Dysautonomia (FD), a rare disease and funds for the Familial Dysautonomia Foundation. Pyper was born with Familial Dysautonomia (FD). that affects the autonomic and sensory nervous systems, which controls voluntary Read more >

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10:30 am

Rare Disease Day Bay Area 2022

February 27 @ 10:30 am - 9:00 pm
|Recurring Event (See all)

One event on February 27, 2022 at 10:30 am

Rare Disease Day Bay Area is a 2 Day Livestreamed Event on Saturday 2/26 and Sunday 2/27, that is held every year in the Bay Area. This free event will feature over 25 DJs from around the globe, performances, short films, rare disease guest speakers, live cooking demos, assistive yoga, Physical Therapy exercises, live auction Read more >

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10:45 am

Zebra 5K Run, Walk, Roll or Stroll

February 27 @ 10:45 am - 2:00 pm

The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! Why a Zebra? The Zebra is the official symbol of rare diseases in the United States... currently over 7,000 unique diseases! WHO WE HELP: The Zebra 5k Run/Walk benefits the greater rare disease community. There are nearly 7,000 diseases considered "rare," Read more >

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6:00 pm

New York Rare Disease Day Virtual Event

February 27 @ 6:00 pm - 7:30 pm

New York Rare Disease Day Virtual Event Sunday, February 27, 2022 6:00 pm – 7:30 pm EST Please join patients, families, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community in New York. Our goal is to educate the general public on the challenges faced by rare disease Read more >

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