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Events for February 28, 2022

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Sällsynta dagen – Ta del av fakta, livsberättelser, intervjuer och musik, var du än är!

February 28, 2021 - February 28, 2022

Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en orsaksdiagnos?Hur har 2020 års nobelpris för gensaxen CRISPR-Cas9 möjliggjort genterapi för svårt sjuka personer?Var kan man finna information och stöd när man möter en person med en sällsynt diagnos?Den sista februari varje år, i år Read more >

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Raras Com Ciência

November 15, 2021 - December 30, 2022
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SpectacuRARE Fest 2022

December 3, 2021 - February 28, 2022
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Vaincre la Cardiomyopathie et L’Insuffisance Cardiaque

December 6, 2021 - June 18, 2022
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Primer concurso de videos sobre Enfermedad Raras de la Península de Yucatan

December 13, 2021 - February 23, 2022
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Rare Do Care Walk-Run-N-Roll

February 1 - February 28

Show that you DO care for rare, and celebrate Rare Disease Month with SRNA! Challenge yourself to go further by participating in our Rare Do Care Virtual Walk-Run-N-Roll. Between now and February 28, log your miles as you walk, run, or roll in your neighborhood. Invite your friends and family to join, no matter where Read more >

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Colorful palms!

February 1 - March 1
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Serie de eventos Conmemoración Enfermedades Huérfanas 2022 -hATTR en Colombia la enfermedad de las mil caras

February 9 - March 2
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Raros Eu me Importo

February 16 - March 16
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Get Creative – Enter IDFA’s Rare Disease Day Competition

February 17 - February 28
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Grin for Wishes

February 19 - February 28
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“Se Ú[email protected] como [email protected]

February 21 - February 28
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Iluminación Cámara de Diputados 24-28 febrero 2022

February 24 - February 28
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University of Nottingham Illumination

February 25 - February 28
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Lights on Rare Disease – Lucca

February 25 - February 28
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Social Media Creatives

February 25 - March 1
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#RunForRaiden

February 26 - February 28
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Arnprior Ontario Shares Our Colours

February 26 - February 28
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Lights on Rare Disease – Trapani

February 27 - February 28
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Light Up for Rare Disease Day at The Pavilion at the Hospital of the University of Pennsylvania

February 28

Magnolia Wang, a Biology Major and University Scholar at the University of Pennsylvania, has conducted in-depth research on the STAC3 gene and its associated genetic disorder, Native American Myopathy (NAM), and seeks to raise awareness of the rare disease and advocate for comprehensive genetic testing and research. NAM is a putative autosomal recessive disorder of Read more >

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Oxford-Harrington Rare Disease Centre Webinar

February 28
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Jet d’eau in purple

February 28
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VI FÓRUM DIA MUNDIAL DAS DOENÇAS RARAS

February 28
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RRD Verona

February 28
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Lights on Rare Disease – Lecco

February 28
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Lights on Rare Disease – Ferrara

February 28
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Walk around Rare Disease – Ferrara

February 28
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AST informa

February 28
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Lighting Up for Rare – US Bank Stadium

February 28
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Rare Disease in Newcastle: Progress and Future Priorities

February 28
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Rare disease day!

February 28
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A Friendship Story

February 28
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Recognising Autoinflammatory Disorders

February 28
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Arizona Angioma Alliance and HODA Rare Disease Day Demonstration

February 28
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Warren City Hall Lights Up

February 28 - March 1
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Izamiento de ntra. enseña patria e iluminación de los principales edificios y monumentos de la pcia. de Santa Fe

February 28
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יום הבינלאומית של מחלות נדירות

February 28
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#ShowYourStripes: Together we can #FindTheCure for #SPG56

February 28
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6th Rare Disease Day at “KASCH”

February 28
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Rare Disease Day 2022 | Illuminations in Poland

February 28
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Lights on Rare Disease – Cittadella (PD)

February 28
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Historical University Marburg lights up on “Rare Disease Day”

February 28
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RARE DISEASE DAY LIFHT UP THE UNIVERSITY

February 28

My daughter, Kobi Isabella Painting, petitioned Southeastern Louisiana University to light up the University Center with the RARE colors Sunday, February 27, and Monday, February 28th. The university did it! Her two older sisters have CTX, and she wants to bring awareness about the disease. She’s also competing in the Miss Louisiana contest in June Read more >

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Ongoing

Rutgers Rare Disease Day Chipotle Fundraiser

February 15 @ 5:00 pm - February 28 @ 9:00 pm

We are hosting a Chipotle fundraiser to raise money for NORD in honor of Rare Disease Day 2022, which is observed on Feb 28th. If you'd like to support rare diseases, come to the George Street Chipotle (387 George St, New Brunswick, NJ 08901) on 2/28 at 5-9 pm for dinner. 33% of the proceeds Read more >

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9:30 am

Voices of Patients, Researchers and Resources – A Rare Disease Day Forum

February 28 @ 9:30 am - 10:30 am

In honor of Rare Disease Day, Connecticut Children’s, JAX and UConn Health jointly present a virtual forum for Connecticut rare disease patients, advocates, and policymakers. Please join us via Zoom to hear directly from those living with rare disorders, learn from cutting-edge physician researchers who are committed to identifying treatments and cures, and for information Read more >

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10:00 am

Rare Disease Day at NIH 2022

February 28 @ 10:00 am - 6:00 pm

Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH as part of this global observance. Rare Disease Day at Read more >

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12:00 pm

NORD Rare Disease Day Speaker Series hosted by Magnolia WAng

February 28 @ 12:00 pm - 1:00 pm

Magnolia Wang, a Biology Major and University Scholar at the University of Pennsylvania, has conducted in-depth research on the STAC3 gene and its associated genetic disorder, Native American Myopathy (NAM), and seeks to raise awareness of the rare disease and advocate for comprehensive genetic testing and research. NAM is a putative autosomal recessive disorder of Read more >

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1:00 pm

Rocket Pharma Celebrates Rare Disease Day 2022

February 28 @ 1:00 pm - 5:00 pm

REGISTER TODAY FOR THE WEBCAST! Rocket Pharma Celebrates Rare Disease Day 2022 START DATE: 2/28/2022 START TIME: 1:00 PM EST DURATION: 240 MINUTES ABSTRACT: Our mission is to seek gene therapy cures for people living with rare diseases, who are our North Star. We invite you to our annual celebration of Rare Disease Day at Read more >

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1:30 pm

NORD’s Virtual Rare Disease Day

February 28 @ 1:30 pm - 2:30 pm

SHOW YOUR STRIPES WITH NORD! Grab your favorite zebra print shirt or toss on a striped scarf and meet us online for a community gathering marking the 12th annual Rare Disease Day! This one hour event will be packed with entertainment from a star-studded guest lineup and offer a place to connect and chat with Read more >

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2:00 pm

50 Years With PKU: A Discussion With Dr. Jane Breck: UPMC Children’s Hospital of Pittsburgh Center for Rare Disease Therapy Webinar

February 28 @ 2:00 pm - 3:00 pm

Join us for a discussion about phenylketonuria with Jerry Vockley, MD, PhD, and Jane Breck, MD, who has studied PKU and treated patients with the condition for decades. A question-and-answer session will take place at the end of the hour. Registration is free. Registration link: https://attendee.gotowebinar.com/register/4975728142246791438

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“A Window Into RARE”

February 28 @ 2:00 pm - 3:30 pm
|Recurring Event (See all)

One event on February 28, 2022 at 2:00 pm

“A Window Into RARE” a Rare Disease Day panel discussion presented by BioNews Join our Rare Disease Day virtual panel discussion as BioNews columnists from a variety of our rare communities participate in a lively conversation with fellow patient advocate Liza Bernstein. This window into often overlooked aspects of life with a rare disease will provide Read more >

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