National Tay-Sachs & Allied Diseases (NTSAD) is hosting the 44th Annual Family Conference from 7/7-7/10 in Denver, Colorado for anyone coping with a diagnosis or loss from Tay-Sachs, Canavan, GM1 gangliosidosis, or Sandhoff diseases. There is financial assistance for families. The four-day conference provides professional and peer support and the latest updates on research and Read more >
Find out more »The SSADH Association welcomes all patients with SSADH deficiency to the Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on 7/8 along with families, caregivers, teachers, aids, therapists, researchers, and physicians to engage and give your perspective on daily life with SSADH. The meeting is being held in the Bethesda Marriott Downtown on Friday, July 8. Register Read more >
Find out more »
