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Events for July 8, 2022

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Raras Com Ciência

November 15, 2021 - December 30, 2022
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SpectacuRARE Fest 2022

December 3, 2021 - February 28, 2022
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Vaincre la Cardiomyopathie et L’Insuffisance Cardiaque

December 6, 2021 - June 18, 2022
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Primer concurso de videos sobre Enfermedad Raras de la Península de Yucatan

December 13, 2021 - February 23, 2022
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National Tay-Sachs & Allied Diseases Association Annual Family Conference

July 7 - July 10
Renaissance Denver Central Park Hotel, 3801 Quebec St
Denver, CO United States
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National Tay-Sachs & Allied Diseases (NTSAD) is hosting the 44th Annual Family Conference from 7/7-7/10 in Denver, Colorado for anyone coping with a diagnosis or loss from Tay-Sachs, Canavan, GM1 gangliosidosis, or Sandhoff diseases. There is financial assistance for families. The four-day conference provides professional and peer support and the latest updates on research and Read more >

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7:30 am

SSADH Association Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting

July 8 @ 7:30 am - 5:30 pm
Marriott Bethesda Downtown at Marriott HQ, 7707 Woodmont Avenue
Bethesda, MD 20814 United States
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The SSADH Association welcomes all patients with SSADH deficiency to the Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on 7/8 along with families, caregivers, teachers, aids, therapists, researchers, and physicians to engage and give your perspective on daily life with SSADH. The meeting is being held in the Bethesda Marriott Downtown on Friday, July 8. Register Read more >

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