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Events for June 2018

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2018 Rare Disease Summer Family Camp

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2018 Rare Disease Summer Family Camp

Worldwide LAM Awareness Month (LAM Foundation)

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2018 Rare Disease Summer Family Camp

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2018 Rare Disease Summer Family Camp

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Suzanne Wasserman Celebration of Her Life

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Speaking of NEC: Unplugged

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Orphan Drug Act Webinar: What Everyone Affected by Rare Disease Should Know

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IAMRARE Registry Platform Demo, NORD Research Department-June

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United Leukodystrophy Foundation Family and Scientific Conference

AAMDSIF Patient & Family Conference – Seattle, WA

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United Leukodystrophy Foundation Family and Scientific Conference

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United Leukodystrophy Foundation Family and Scientific Conference

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Eighth Biennial Cornelia de Lange Syndrome Scientific & Educational Symposium

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Eighth Biennial Cornelia de Lange Syndrome Scientific & Educational Symposium

Hydrocephalus Association National Conference

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Hydrocephalus Association National Conference

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Hydrocephalus Association National Conference

Alagille Syndrome Alliance Annual Gala: The Dawn of a Dream

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