Support NORD's Students for Rare Chapter at the University of Virginia by running or walking in-person or virtually! We welcome supporters from all areas! Race start time: 9am ET Location: UVA South Lawn Price: $18 Click here to register! If you aren't able to participate but would still like to support, please click here to …
Help support Danny's Dose Alliance in our legislative, regulatory, and educational efforts to assure prompt and proper care for over 28 million Americans living with 1 of 32 primary conditions identified to date that require specialized emergency treatment. Join us for a trivia night that'll be full of fun and laughter, great food, raffle items, …
Continue reading "Decade Dash Trivia Night for Danny’s Dose"
Dine-in or take-out at Michael's Tap Room in Bethel, CT on Monday May 6th between 5pm-8pm and a portion of the proceeds will be donated to NORD! Reservations are encouraged.
Join the California Rare Action Network for a Special Tea Brunch honoring rare moms on Saturday, May 11 from 10am-2pm. This event is free for mothers of children living with rare diseases. Please RSVP by May 5th; registration is required, click here to register. Location: Good Morning Maxwell, 90 Mission Drive #6, Pleasanton, CA 94566
This meeting will be held virtually, the meeting access will be posted closer to the meeting date.
Learn more at https://runningforrare.org/events/
The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum will be held in Los Angeles, CA at the Hilton Universal City on June 8, with a welcome reception the evening of June 7. After six years, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease …
Continue reading "NORD® Living Rare, Living Stronger® Patient and Family Forum"
Learn more at https://runningforrare.org/events/
Learn more at https://runningforrare.org/events/
Learn more at https://runningforrare.org/events/
Learn more at https://runningforrare.org/events/