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X-WR-CALNAME:National Organization for Rare Disorders
X-ORIGINAL-URL:https://rarediseases.org
X-WR-CALDESC:Events for National Organization for Rare Disorders
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DTSTART;TZID=America/New_York:20260917T120000
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UID:10001261-1789646400-1789651800@rarediseases.org
SUMMARY:Rethinking Rare Cancer Research Webinar
DESCRIPTION:Join NORD’s Rare Cancer Coalition on Thursday\, September 17 at 12 p.m. ET for a webinar focused on exploring how patient perspectives can help strengthen and improve rare cancer research ahead of Rare Cancer Day. \nExperts and patients will discuss the opportunities and challenges rare cancer patients face when participating in research and share why integrating patient perspectives is essential to advancing future studies. \nWhether you are a patient\, caregiver\, advocate\, researcher\, or healthcare professional\, this conversation will highlight the important role patient engagement plays in driving research forward and improving outcomes for the rare cancer community. \nRegister Today!
URL:https://rarediseases.org/event/rethinking-rare-cancer-research-webinar/
CATEGORIES:NORD Events,NORD Member Event
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DTSTART;VALUE=DATE:20260923
DTEND;VALUE=DATE:20260924
DTSTAMP:20260824T041141Z
CREATED:20260824T041141Z
LAST-MODIFIED:20260824T041141Z
UID:10001258-1790121600-1790207999@rarediseases.org
SUMMARY:Rare Cancer Day\, September 23 
DESCRIPTION:Rare Cancer Day\, September 23  \nRare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition®\, which is composed of 30+ rare cancer-specific member organizations\, Rare Cancer Day is observed on September 23 to highlight the challenges patients face and to unify individuals living with rare cancers for awareness and early diagnosis. Join us for our Rare Cancer Day webinar\, and follow us throughout the month to learn more about patients\, caregivers\, and clinicians advocating for effective treatment for rare cancers.  
URL:https://rarediseases.org/event/rare-cancer-day-september-23/
CATEGORIES:NORD Events,NORD Member Event
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