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X-WR-CALDESC:Events for National Organization for Rare Disorders
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DTSTART;TZID=America/New_York:20261203T180000
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UID:10001418-1796320800-1796328000@rarediseases.org
SUMMARY:NORD Community Meet Up - Trivia Night at Gulf Stream Brewing
DESCRIPTION:Join NORD staff and community members for a night of FL based trivia at Gulf Stream Brewing in Fort Lauderdale\, Florida! Our community meet up starts at 6 p.m.! This is a chance to connect before LRLS Florida the next day. \n\n\nDate: Thursday\, December 3\, 206\n\n\nLocation: Gulf Stream Brewing Co.\n1105 NE 13th St.\nFort Lauderdale\, FL 33304\n\n\nTime: 6:00 p.m.\n\n\nRSVP here: https://www.surveymonkey.com/r/NF9CKNG
URL:https://rarediseases.org/event/nord-community-meet-up-trivia-night-at-gulf-stream-brewing/
CATEGORIES:NORD Events,Rare Action Network Events,RareAction Network Events
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DTSTART;TZID=America/New_York:20261204T100000
DTEND;TZID=America/New_York:20261204T140000
DTSTAMP:20261103T234507Z
CREATED:20261103T234507Z
LAST-MODIFIED:20261103T234507Z
UID:10001417-1796378400-1796392800@rarediseases.org
SUMMARY:Living Rare Living Stronger Florida
DESCRIPTION:The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare\, Living Stronger® forum. \nThis event is free for rare disease patients & caregivers and will:\n\nFeature educational sessions designed to help attendees navigate life with a rare disease or as a rare caregiver.\nHelp alleviate feelings of isolation by connecting caregivers and those living with rare diseases to each other.\nIntroduce attendees to local advocates and present opportunities to engage in state/federal grassroots advocacy efforts.\nHighlight community-based organizations that have resources for people with rare diseases.\nShowcase how designated NORD® Rare Disease Centers of Excellence are advancing rare disease care and research.\n\n\n\nDate: Friday\, December 4\, 2026\nLocation: Broward Center for Performing Arts\, Fort Lauderdale\, FL\n\nTime: Registration begins at 10 a.m.\, and the programming goes from 10:30 a.m. to 2 p.m.
URL:https://rarediseases.org/event/living-rare-living-stronger-florida/
CATEGORIES:NORD Events,Rare Action Network Events,RareAction Network Events
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