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September 2021

Telehealth Awareness Week

September 19 - September 25

The National Organization for Rare Disorders (NORD) is proud to support the inaugural Telehealth Awareness Week presented by the American Telemedicine Association! During the COVID-19 public health emergency, telehealth has played a critical role in providing safe, quality care to patients and families across the country. Taking place September 19-25, 2021, Telehealth Awareness Week will highlight the central role that telehealth now plays in the delivery of healthcare services and educate patient communities, consumers, policymakers and clinicians about the benefits…

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Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research

September 30 @ 2:00 pm - 3:00 pm

Many rare cancers are difficult to diagnose and treatment options are limited. Patients living with, or at risk of, a rare cancer often encounter obstacles accessing appropriate screening, referrals, counseling, effective therapies, and research opportunities. At the same time, clinicians and rare cancer researchers are challenged by complex health conditions, limited access to diagnostic tools, sparse clinical study data and small research populations. The National Organization for Rare Disorders (NORD) is here to help patients and clinicians alike address these gaps and break down…

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October 2021

4th Annual Cedars-Sinai Intracranial Hypotension Symposium

October 2

This symposium will be a hybrid format with both in-person and virtual attendees. Registration is now OPEN to virtual participants, with in-person registration to follow when regulations permit. While the content is designed for health professionals, laypersons are welcome to attend.

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CureDuchenne 2021 FUTURES National Conference

October 8 - October 10

The CureDuchenne 2021 FUTURES National Conference is a two-day event focused on bringing education, resources, and connection to the Duchenne community in a family-friendly environment. This year’s conference agenda and special events will focus on Quality of Life. CureDuchenne will be offering multiple social events, robust presentations and panel discussions, a Symposium, a Resource Fair, an e-Gaming lounge and Childcare.

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The Mast Cell Disease Society 24th National Conference

October 13 - October 20

The Mast Cell Disease Society's 24th National Conference will be held virtually October 13- 20, 2021 and consist of lay-person-focused medical presentations, panel discussions, workshops and support group activities with time for questions, and will incorporate breaks to allow for resting periods, and free time to allow for casual socializing through our virtual platform. This conference will provide a uniquely supportive environment in which patients, caregivers and families learn to self-advocate, and will offer exposure to research and clinical trial…

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Heme Biosynthesis and the Porphyrias 2021 Symposium

October 15 - October 17

This 2.5-day educational symposium will feature international and national experts who will present the latest findings on the biology, transport, and regulation of heme biosynthesis; as well as the clinical features, management, and current and emerging treatments for the acute hepatic and erythropoietic porphyrias. The symposium offers up to 25 CME credits

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Rare Diseases and Orphan Products Breakthrough Summit 2021

October 18 @ 8:00 am - October 19 @ 5:00 pm
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NTSAD Imagine & Believe Reception

October 28 @ 7:00 pm - 8:00 pm
Royal Sonesta Hotel, 40 Edwin Land Blvd.
Cambridge, MA 02142 United States
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NTSAD's annual Imagine & Believe reception will be held on October 28 at the Royal Sonesta Boston. For those living outside the Boston area, there will be a free virtual Imagine & Believe event on November 3 from 7-8 p.m. EDT. The safety and wellbeing of our guests and our Community, who are particularly vulnerable, remain top priorities. We continue to keep an eye on the Delta variant, and we will postpone the in-person reception, if necessary. At this time,…

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November 2021

IFFGD 30th Anniversary Patient Education Series Event

November 6 - November 7

To commemorate the 30th anniversary of the International Foundation for Gastrointestinal Disorders, we will be hosting a very special virtual edition of the Norton Education Series (NES). The Nancy and Bill Norton Patient Education Series Event: IFFGD’s Thirtieth Anniversary Edition will be a mix of pre-recorded videos and a live feed and will take place Saturday, November 6th and Sunday, November 7th. William Chey, MD will Chair the Program Committee and Lin Chang, MD and John Pandolfino, MD will serve…

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2021 World Pediatrics Conference

November 19 @ 9:00 am - November 20 @ 5:00 pm
Avani Atrium Bangkok Hotel, 1880 New Petchburi Road, Bangkok 10310 Thailand
Bangkok, 10310 Thailand
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Episirus Scientifica regards each one of the individuals to go to the 2021 World Pediatrics Conference accredited with CPD credits during September November 19-20, 2021 in Bangkok, Thailand in which melds brief keynote presentations, speaker talks, Exhibition, Symposia, Workshops. Meet Global Pediatricians from Asia-pacific, Middle East, India, Europe, USA

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