Join the LGS Community on December 5th before AES for a special showing of It’s All Your Fault, Tyler Price! - a new musical from Emmy winner Ben Decter (Lucifer) …
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December 5 – 6, 2024 Omni Los Angeles Hotel at California Plaza 251 South Olive Street Los Angeles, California, USA "We hope you will join us for SLC6A1 Connect’s 2024 …
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EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
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The RYR-1 Foundation is celebrating a decade of supporting individuals and families impacted by RYR-1-Related Diseases (RYR-1-RD). The organization holds International Family Conferences for the RYR-1-RD Community and the fourth …
EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"
Learn more at https://runningforrare.org/events/
