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X-WR-CALDESC:Events for National Organization for Rare Disorders
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DTSTART;VALUE=DATE:20260417
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SUMMARY:Rare Cancer Coalition at AACR! 
DESCRIPTION:Rare Cancer Coalition at AACR! April 17 – 22\, San Diego\, CA The Rare Cancer Coalition will have a booth at the American Association for Cancer Research (AACR) Annual Meeting\, where we’ll be connecting with researchers\, clinicians\, and advocates to highlight the vital role of the rare cancer patient community. Stop by to learn more about our network of Rare Cancer Coalition members\, and to hear more about our work to bridge the gap between patient advocates and new research initiatives.  
URL:https://rarediseases.org/event/rare-cancer-coalition-at-aacr/
CATEGORIES:NORD Member Event
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DTSTART;TZID=America/New_York:20260418T150000
DTEND;TZID=America/New_York:20260418T170000
DTSTAMP:20250530T155037Z
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UID:10000837-1776524400-1776531600@rarediseases.org
SUMMARY:🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings
DESCRIPTION:Survivor Support Group – Monthly Virtual Meetings\nDates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here \nThe Raymond A. Wood Foundation’s Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris\, these sessions provide a safe space to share experiences\, discuss challenges\, and connect with others who understand your journey. \nEach meeting includes breakout sessions tailored to different age groups\, ensuring that all participants can engage in meaningful conversations. Whether you’re seeking support\, camaraderie\, or simply a place to be heard\, this group is here for you. \nParticipation is free\, but registration is required. For more information or assistance\, please contact outreach@rawoodfoundation.org.
URL:https://rarediseases.org/event/%f0%9f%8c%9f-raymond-a-wood-foundation-survivor-support-group-monthly-virtual-meetings/2026-04-18/
CATEGORIES:NORD Member Event
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