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NORD’s Rare Diseases and Orphan Products Summit is the largest and most meaningful multi-stakeholder event of its kind, powered by NORD’s 35 years of leadership on behalf of patients and families affected by rare diseases. Held annually in metro Washington, DC, the Summit convenes top leaders from the FDA, NIH, industry, patient groups, payers and research institutions to address issues of critical importance to the community.

Hear what they’re saying… 

“Fantastic meeting of all the relevant stakeholders for bringing treatments to patients.” – Senior Director, Medical Affairs, Cytokinetics, Inc.

The NORD Summit was an incredibly valuable meeting to connect stakeholders, share information and provide inspiration and motivation to support the rare disease community.” – U.S. Pompe Disease Head, Genzyme

I made many new contacts in the rare disease patient advocacy, government and industry fields. Thanks to the presentations, I am better informed regarding the latest developments in rare disease clinical trials, the FDA approval processes, the work of other patient networks, and on and on. ” – President, XLH Network



Save the Date!

NORD’s 2017 Rare Diseases and Orphan Products Breakthrough Summit will take place in the Washington, D.C. metro area in the fall.

For sponsorship opportunities, please contact Derek Gavin at