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Patient Organization Programs

NORD is committed to serving the needs of patients and the organizations that serve them. Learn about the ways you can help support programs that create and strengthen independent disease-specific organizations.

Patient Organization Programs

Contact

Email council@rarediseases.org, to learn more about these programs and opportunities to support them.

Mentorship Programs

NORD offers a broad range of educational services to help its 230+ member organizations build capacity and share best practices. Our members serve disease-specific patient communities and join together through NORD for growth and mentorship. Grants provide meaningful training and development for members and visibility and recognition opportunities for sponsors

RareLaunch™

NORD is the go-to resource to establish a disease-specific organization for patients who do not have a community. Through our multi-phased RareLaunch™ program, NORD’s seasoned team conducts patient outreach and recruitment; launches a start-up organization presence; provides organization development and awareness-building services and, ultimately, launches the new community as a self-sustaining and independently run organization.