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Patient Organization Programs

NORD is committed to serving the needs of patients and the organizations that serve them. Learn about the ways you can help support programs that create and strengthen independent disease-specific organizations.

Patient Organization Programs

Contact

Email council@rarediseases.org to learn more about these programs and opportunities to support them.

Mentorship Programs

NORD offers a broad range of educational services to help its 280+ member organizations build capacity and share best practices. Our members serve disease-specific patient communities and join together through NORD for growth and mentorship. Grants provide meaningful training and development for members and visibility and recognition opportunities for sponsors

Guide to Good Governance

Very small non-profit organizations are marked with challenges around Board governance, fundraising and other governance practices. They seek guidance from NORD on healthy interactions with industry and on transparent, ethical practices. Many struggle to grow and experience challenges in fundraising due to their smaller, rare communities.  NORD is positioned to support them with resources and training on how to build a healthy non-profit infrastructure while supporting transparency, ethics and good governance. Grants provide our Member Organizations with tools to strengthen their work and to teach them the importance of prioritizing Board management and evaluation.