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Patient Workshops

NORD’s experienced team hosts a variety of workshops for patients and caregivers throughout the U.S. for connecting, sharing, networking and learning. While a primary purpose is education, these meetings provide vital emotional support through connection with others with the same diagnosis.

This year, NORD’s team hosted over 50 meetings across the country, connecting more than 1,000 patients, caregivers, organizations, and medical experts.  Each meeting is tailored to meet the needs of the patient community.  Our goal is to ensure that each patient leaves feeling empowered and connected to a larger community.

To learn more about how you can help a patient community with NORD contact Derek Gavin at dgavin@rarediseases.org 

Patient Workshops

Patient Support

NORD also helps prepare patients for opportunities to inform policymakers, regulators and the public about issues of concern to the rare disease community.