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COVID-19 Rapid Response Seed Grants

COVID-19 Impact

The COVID-19 pandemic, and its resulting moratorium on in-person meetings, has unequivocally affected nonprofit fundraisers taking place through events like golf tournaments, galas, and conferences. This is true of our rare disease member organizations, especially the 30% of our members who have an annual revenue stream of under $75,000. The organizations that serve over 25 million Americans living with rare diseases find themselves in a crisis to fund their mission and keep their doors open. NORD’s COVID-19 Rapid Response Program for our member organizations helps the rare disease community face and better cope with these new challenges. As part of this multi-faceted program, we are providing seed grants for NORD member organizations.

Seed Grants for NORD Member Organizations

NORD’s COVID-19 Rapid Response Seed Grants Program is an exclusive funding opportunity for NORD member organizations. NORD will provide critical funding of up to $15,000 as a stop-gap measure to support patient nonprofit organizations with the burden of COVID19-related lost income.

General parameters:

  • US-based NORD member organizations can apply for $5,000-$15,000 to help keep their doors open
  • Grants to include funding for expenses associated with services including but not limited to:
    • Virtual tools/software platforms
    • Development staff training on fundraising during a crisis
    • HR-related training for organizations struggling with telework, etc.
    • Consulting on relevant development, technology, communications or human resources
  • Funding must be used in 2020



Program OpensJune 16
Application DeadlineJuly 3
Applications Reviewed by Grant CommitteeJuly 15
Applicants Notified and Announced at Living Rare, Living StrongerJuly 18-19
Reporting DueOngoing
Grant Outcomes ReportDecember 1