NORD’s regional membership meetings are designed to help you meet, network, learn and share best practices with leaders of other patient organizations in your geographic area. They provide capacity building training and community updates, encourage knowledge sharing, and foster collaboration that can continue throughout the year. These meetings are an opportunity to create meaningful connections and facilitate relationships to benefit all within our network.
2018 California Regional Meeting
NORD invites all member organizations and advocates to participate in the Regional Membership Lunch Meeting being held on Tuesday, September 11 in Anaheim, CA. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. This event is hosted at no cost to participants.
Tuesday, September 11, 12:00pm to 2:00pm
Where: Hyatt Regency Orange County, 11999 Harbor Boulevard, Garden Grove, CA 92840
If you have any questions, please contact Debbie Drell, Director of Membership at 202-577-1024 or firstname.lastname@example.org.
2018 Rare Diseases and Orphan Products Breakthrough Summit
During the 2018 NORD Rare Summit, over 700 leaders from FDA, NIH, industry, patient groups, payers and research institutions will address the New Era of Patient-Focused Innovation. Together, NORD Rare Summit attendees will explore the new and innovative ways in which patients and caregivers are helping drive progress for the rare disease community.
Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations.
Monday, October 15 – Tuesday, October 16
Where: Marriott Wardman Park, Washington, D.C.
NORD Members-Only Pre-Summit Networking Meeting
Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations. All representatives from Member Organization are invited to attend this pre-conference meeting.
When: Sunday, October 14, 1:00 p.m. – 5:00 p.m.
The RareAction Network (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. Register for a RAN event today to get involved in state advocacy and connect with others in the rare disease community! View upcoming meetings here!
California RAN Advocacy Workshop Luncheon
Garden Grove, CA
New Hampshire RAN Advocacy Workshop Luncheon