NORD’s regional membership meetings are designed to help you meet, network, learn and share best practices with leaders of other patient organizations in your geographic area. They provide capacity building training and community updates, encourage knowledge sharing, and foster collaboration that can continue throughout the year. These meetings are an opportunity to create meaningful connections and facilitate relationships to benefit all within our network. View upcoming events >
2017 Rare Diseases and Orphan Products Breakthrough Summit
As major changes to the nation’s healthcare system are debated, the NORD Summit will provide a unique opportunity to hear from the experts and join the conversation on issues of unprecedented importance.
Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations. Scholarship applications are also available for member organizations of NORD.
When: Members Only Meeting: Sunday, October 15 (more information coming soon)
Summit: Monday, October 16-Tuesday, October 17
Where: Marriott Wardman Park, Washington, D.C.
NORD Members-Only Pre-Summit Networking Meeting
Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations. All representatives from Member Organization are invited to attend this pre-conference meeting.
When: Sunday, October 15, 4:00 p.m. – 8:00 p.m.
The Rare Action Network℠ (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. Register for a RAN event today to get involved in state advocacy and connect with others in the rare disease community! View upcoming meetings here!
NORD Carolinas Rare Action Network Luncheons
If you are involved in our South Carolina and North Carolina Rare Action Network, we hope you can join us for one of our upcoming Rare Action Network (RAN) Luncheons. These are free meetings that will give you the opportunity to discuss current legislation in your state and upcoming opportunities to get involved in advocacy. Join us and connect, learn, and share with other rare disease advocates and NORD’s RAN Team. The events are free and provided at no cost to attendees.
Columbia, South Carolina
Wednesday, September 13, 2017 at Ruth’s Chris Steak House
Register Here for Columbia, SC
Raleigh, North Carolina
Thursday, September 14, 2017 at Fleming’s Prime Steakhouse & Wine Bar.
Register Here for Raleigh, NC