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Regional Meetings

NORD’s regional membership meetings are designed to help you meet, network, learn and share best practices with leaders of other patient organizations in your geographic area.  They provide capacity building training and community updates, encourage knowledge sharing, and foster collaboration that can continue throughout the year. These meetings are an opportunity to create meaningful connections and facilitate relationships to benefit all within our network.

 

 

Member group

Upcoming Meeting Dates & Locations

2018 California Regional Meeting

NORD invites all member organizations and advocates to participate in the Regional Membership Lunch Meeting being held on Tuesday, September 11 in Anaheim, CA. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. This event is hosted at no cost to participants.

Tuesday, September 11, 12:00pm to 2:00pm

Where:  Hyatt Regency Orange County, 11999 Harbor Boulevard, Garden Grove, CA 92840

If you have any questions, please contact Debbie Drell, Director of Membership at 202-577-1024 or ddrell@rarediseases.org.

REGISTRATION

2018 Rare Diseases and Orphan Products Breakthrough Summit

During the 2018 NORD Rare Summit, over 700 leaders from FDA, NIH, industry, patient groups, payers and research institutions will address the New Era of Patient-Focused Innovation. Together, NORD Rare Summit attendees will explore the new and innovative ways in which patients and caregivers are helping drive progress for the rare disease community.

Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations.

Monday, October 15 – Tuesday, October 16

Where: Marriott Wardman Park, Washington, D.C.

LEARN MORE

NORD Members-Only Pre-Summit Networking Meeting

Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations. All representatives from Member Organization are invited to attend this pre-conference meeting.

When: Sunday, October 14, 1:00 p.m. – 5:00 p.m.

REGISTRATION

Upcoming Meeting Dates & Locations

Value of Membership

These opportunities are available as a benefit to NORD member organizations
Take advantage of these opportunities by applying for membership today!

RareAction Network® Meetings

The RareAction Network (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. Register for a RAN event today to get involved in state advocacy and connect with others in the rare disease community! View upcoming meetings here!

California RAN Advocacy Workshop Luncheon
September 11
Garden Grove, CA

New Hampshire RAN Advocacy Workshop Luncheon
October 5
Concord, NH