NORD’s regional membership meetings are designed to help you meet, network, learn and share best practices with leaders of other patient organizations in your geographic area. They provide capacity building training and community updates, encourage knowledge sharing, and foster collaboration that can continue throughout the year. These meetings are an opportunity to create meaningful connections and facilitate relationships to benefit all within our network.
Living Rare, Living Stronger NORD Patient and Family Forum
June 21-23, 2019
Join NORD this June in Houston, TX for a very special gathering! The 2019 Living Rare, Living Stronger|NORD Patient & Family Forum will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connection – in an atmosphere of support and understanding – plus fun!
2019 Rare Diseases & Orphan Products Breakthrough Summit
October 21-22, 2019
During the 2018 NORD Rare Summit, over 800 leaders from FDA, NIH, industry, patient groups, payers and research institutions addressed the New Era of Patient-Focused Innovation. Together, NORD Rare Summit attendees explored the new and innovative ways in which patients and caregivers are helping drive progress for the rare disease community.
The RareAction Network (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. Register for a RAN event today to get involved in state advocacy and connect with others in the rare disease community! View upcoming meetings here!