To Top

Patient Stories

Giving Spotlight: HomeServe USA Leadership and Employees Donate More Than $26,000 to NORD

“We are proud to support the efforts of important organizations like NORD, and to have an employee base so willing to give to the communities and charities that matter to them most.”… Read More

They Said things like, “She’ll Grow Out of It”

Abigail MacCurtain was born a happy and healthy baby girl in the winter of 2011, despite being born at 35 weeks due to Premature Rupture of Membranes (PROM). The only notable problems were a… Read More

Taking on NYC and a Rare Disease: An Introduction


Sophia Hanson is a college student and has the rare disease, Lymphedema.  She is writing for NORD about the balancing act of going to… Read More

Liam Cruz’ Diagnostic Journey

On July 27, 2011 the Cruz family welcomed a gorgeous baby boy, Liam, to their lives. Weighing 7lbs and 19 inches long, he was born at Greenwich Hospital in Greenwich, CT and discharged with… Read More

Raise Your Voice: Rare Disease Day 2016 is Coming

Rare Disease Day Handprints Across America

Date: February 29, 2016
Global Theme: Patient Voice
Global Slogan: Join us in making the voice of rare… Read More