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Patient Stories

Misconceptions about living with a rare disease – the community weighs in

A few weeks ago, we asked the community what some misconceptions were about living with a rare condition. The Mighty collected your responses and published them in the article below on February 28 for Read More

Ben’s Story in Honor of Rare Disease Day

The following story was submitted by Leah Schust in honor of Rare Disease Day. In this story, Leah shares her family’s journey of searching for and receiving a diagnosis for their son,… Read More

Connor’s Story in Honor of Rare Disease Day

The following story was submitted by Katia Luedtke in honor of Rare Disease Day. In this story, Katia shares her family’s journey of searching for and receiving a diagnosis for their son,… Read More

India’s Story in Honor of Rare Disease Day

The following story was submitted by Sarah Stuker in honor of Rare Disease Day. In this story, Sarah shares her family’s journey of searching for and receiving a diagnosis for their daughter,… Read More

McCarthy Story in Honor of Rare Disease Day

The following story was submitted by Lindsey McCarthy in honor of Rare Disease Day. In this story, Lindsey shares her family’s journey of receiving a diagnosis for their son, James, of a… Read More