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Start a Patient Organization

Patient organizations for specific diseases are usually started by people who are affected by the ailment, their relatives or friends. The need to create a nonprofit organization is often very apparent. Public attention and research dollars are generally aimed at diseases that are highly publicized, and raising substantial amounts of money for research is usually not possible if donors cannot get a tax deduction for their gifts. Furthermore, if the efforts of individuals and families go uncoordinated, it is much more difficult to make progress than if all interested parties work together for the same cause. Incorporation of a nonprofit organization is the logical remedy to solve these problems.

For inquiries related to this program, please email membership@rarediseases.org

Start a Patient Organization

Patient organizations for specific diseases are usually started by people who are affected by the ailment, their relatives or friends. The need to create a nonprofit organization is often very apparent. Public attention and research dollars are generally aimed at diseases that are highly publicized, and raising substantial amounts of money for research is usually not possible if donors cannot get a tax deduction for their gifts. Furthermore, if the efforts of individuals and families go uncoordinated, it is much more difficult to make progress than if all interested parties work together for the same cause. Incorporation of a nonprofit organization is the logical remedy to solve these problems.