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Educational Initiatives

For more than 30 years, NORD has been a trusted source of rare disease information. NORD’s educational initiatives include innovative partnerships and programs to empower patients and their families, inform students of all ages, and support the vitally important work of physicians and other healthcare professionals.

Educational Videos

This is the first video in a new series that NORD is launching to educate patients, doctors and the medical community about rare diseases as part of the organization’s mission to improve quality of life for patients and families affected by rare diseases.

“Making Sense of NOH” (Neurogenic Orthostatic Hypotension) features patient testimonials, including one treated at NYU Langone Medical Center, medical expert advice from physicians at Boston Medical Center and Massachusetts General Hospital, and resources from NORD, including NORD’s Patient Assistance Programs.