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Student Club Program

This program, designed for undergraduate and high school students, provides a pathway to learn about rare diseases, engage with patients and NORD through educational activities, and prepare for a future in the rare disease space.

Current Clubs

University Clubs

  • University of Notre Dame – RareND
  • University of Alberta – National Organization for Rare Disorders Student Association
  • University of Michigan – Ann Arbor – Care About Rare
  • Iowa State University

High School Clubs

  • Amador Valley High School
  • Canyon Crest Academy – Rare Disease Club
  • Westfield High School – Rare Disease Club
  • American Heritage School- Care for Rare
  • Henrietta Lacks Health and Bioscience High School – He La Club
  • Mission San Jose High School



Program Details

  • Clubs will have opportunities to participate in NORD advocacy and education
  • NORD can help you identify local patient/caregiver speakers for campus events
  • NORD will promote awareness of club events via social media and newsletters
  • Club leaders will receive a monthly newsletter

Program Details


– Promote rare disease awareness and education on campus
– Support NORD and educational initiatives on behalf of patients
– Submit annual reports to NORD briefly summarizing their activities
– Registered organization at institution
–  1 Faculty Adviser
– Host 2 events each year, including a Rare Disease Day event

Join Now!