Together, We Are

Reimagining a Brighter Future

Give the gift of hope this holiday season and help improve the lives of 30 million Americans living with a rare disease.


1 in 10

Americans are living
with a rare disease.

That’s about 30 million of our loved ones, friends, colleagues, and neighbors. Across the more than 7,000 known rare diseases, fewer than 5% have treatments. Support NORD in improving the lives of those impacted by rare disease.

NORD's Impact

For over 40 years, NORD has driven progress in rare disease patient care, policy and research.

$0 million in financial assistance for patients and caregivers since 2018

Nearly 0 requests for information, resources, and support responded to by NORD’s Patients Servces team since 2018

Nearly 0 million travel miles reimbursed for patients seeking treatment, clinical trial participation, or specialist consultations since 2018

Connecting 0 NORD® Rare Disease Centers of Excellence in a nationwide network to reimagine rare disease patient care and research

Every Cent Counts

Your donation will enable us to provide and develop life-saving resources that help families navigate a rare diagnosis, access financial services, and make connections that support them on their journey.

Together, we are reimagining a brighter future for people with rare diseases.

Alone we are rare. Together,we are strong.®

National Organization for Rare Disorders