Scroll
To Top

Head of the Herd

Head of the Herd: Rare Leader Spotlight

Thank you for agreeing to participate in our Head of the Herd program. This form will capture some basic information about your organization, your story, and your plans for the future. 

The NORD Membership team will review your submission for a potential post to appear on the NORD website. We will be back in touch with any questions and a request for your approval prior to posting.  
About you






City, State

If you would like for us to share a link to your personal social media account in your profile, please list it here.


Current Rare Disease Work








Just for fun!





Please share a photo with us that we can use at the top of your spotlight.