Living Rare, Living Stronger is an annual patient-focused conference held in a different location each year. Its agenda provides patients and families with practical tools for living their best lives with rare diseases and physicians and medical students with insights to take back to their practice and studies. It is also an opportunity for bonding and fun, with children’s programming, a Family BBQ and a dedicated wellness room.
1600 Lamar Street
Houston, TX 77010
Space Center Houston
1601 E NASA Parkway
Houston, TX 77058
|Early-Bird Rate (expires 4/26/19)||Standard Rate (expires 6/20/19)||Onsite Registration Rate|
|Patient / Caregiver / Representative of NORD Patient Organization Member / Student||$100||$125||$200|
|Professional Advocate / Academic / Physician / Government||$225||$250||$325|
|NORD Corporate Council Members||$1,300||$1,500||$1,900|
|Industry (Pharma, Service Providers, Co-Pay Foundations)||$1,500||$1,700||$2,100|
Any cancellations received in writing on or before June 7, 2019 will be refunded. Any cancellations received in writing between June 8 and June 20 will be refunded 50% of the registration cost (maximum retained for an administrative charge will be $250). No refunds will be made after June 20, 2019. Your registration may be transferred to another member of your family or organization up to 24 hours in advance of the forum. In case of a conference cancellation beyond our control*, you will receive a refund for your conference registration fee only. NORD reserves the right to alter this program without prior notice.
Please note: Speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.
*Events beyond our control include: severe weather conditions, natural and man-made disasters and any other similar events. Patients and caregivers who are unable to attend due to medical emergencies are not required to pay an administration fee.