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The 2020 Living Rare Forum has been tentatively rescheduled for July 18-20. As the coronavirus pandemic evolves, NORD will continue to evaluate our plans for the conference to determine our best course of action for the safety and well-being of our community.

2020 Event Locations

Living Rare, Living Stronger Forum Hotel

The Renaissance Cleveland Hotel
24 Public Square
Cleveland, OH 44113
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Rare Impact Awards Ceremony Location

Rock & Roll Hall of Fame
1100 E 9th St
Cleveland, OH 44114


Early Bird Rate (exp 5/29/20)Standard Rate (by 7/17/20)Onsite Registration
Patient / Caregiver / Representative of NORD Patient Organization Member / Student$125$150$225
Professional Advocate / Academic / Physician / Government$250$275$350
NORD Corporate Council Members$1,400$1,600$2,000
Industry (Pharma, Service Providers, Co-Pay Foundations)$1,600$1,800$2,200
  • Children ages 12 and under are welcome to attend but strongly encouraged to participate in the childcare center. All children ages 12 and under are $99 each.
  • Pricing includes all of the weekend activities (Saturday welcome reception, conference on Sunday, Rare Impact Awards on Sunday night and a brunch on Monday). Credit Card (Visa, MasterCard, AMEX, Discover) are accepted.
  • All advertised discounts are taken from the full, standard rate


Scholarship applications are now closed. If you applied for a scholarship, you will be notified of your determination by March 27, 2020.

Code of Conduct & Media Guidelines

Substitution and Cancellation

Any cancellations received in writing on or before July 1, 2020 will be refunded. Any cancellations received in writing between July 2 and July 17 will be refunded 50% of the registration cost (maximum retained for an administrative charge will be $250). No refunds will be made after July 17, 2020. Your registration may be transferred to another member of your family or organization up to 24 hours in advance of the forum. In case of a conference cancellation beyond our control**, you will receive a refund for your conference registration fee only. NORD reserves the right to alter this program without prior notice. Please note: speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.

**Events beyond our control include: severe weather conditions, natural and man-made disasters and any other similar events. Patients and caregivers who are unable to attend due to medical emergencies are not required to pay an administration fee