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The Living Rare, Living Stronger Forum will be a virtual program this year! NORD’s goal is always for our annual Forum to provide the rare community with networking, education, inspiration, hope and fun. That hasn’t changed for this year’s virtual event.


Patient / Caregiver / Representative of NORD Patient Org Member / Student$39
Professional Advocate / Academic / Physician / Government$75
NORD Corporate Council Members$500
Industry (Pharma, Service Providers, Co-Pay Foundations)$650
    • Pricing includes all activities. Credit card (Visa, MasterCard, American Express and Discover) are accepted.


Scholarship applications are now closed. All applicants will receive an email within the coming weeks with expectations and next steps for the virtual program. In the meantime, please contact [email protected] with any questions.

Code of Conduct & Media Guidelines

Substitution and Cancellation

Any cancellations received in writing on or before July 1, 2020 will be refunded. Any cancellations received in writing between July 2 and July 17 will be refunded 50% of the registration cost (maximum retained for an administrative charge will be $325 for industry registration, $19.​50 for patient registration, etc.) No refunds will be made after July 17, 2020. Your registration may be transferred to another member of your family or organization up to 24 hours in advance of the forum. NORD reserves the right to alter this program without prior notice. Please note: speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.