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Living Rare, Living Stronger 2021 Forum

The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our 2020 virtual program was the most successful LRLS to date!

With 2021 right around the corner we will continue to work hard to keep our community healthy and safe while engaging in this impactful program. Check back regularly as we will update the website often with new developments.
The Living Rare, Living Stronger Patient & Family Forum will be a truly patient-centric event. Through it all, we will maintain our Living Rare, Living Stronger objectives: Networking, Education, Inspiration, Hope and Fun! Also in 2021, The Rare Impact Awards will return to LRLS and all attendees and their guests will be invited to participate.

Event Overview

Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases. We will hear from patients, caregivers, and advocates, as well as the medical community and how everyone works together for the benefit of the rare disease community.
Three distinctive program tracks will present workshops geared towards:

  • Newly diagnosed patients
  • Long-term patients
  • Caregivers

In addition to the sessions above, this year the Living Rare Forum will provide interactive Q&A and networking sessions, inspiring plenary sessions, and plenty of fun and surprises!

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: Laura Mullen at [email protected]