The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our 2020 virtual program was the most successful forum to date!
In 2021 we will continue to work hard to keep our community healthy and safe while engaging in this impactful program. Check back regularly as we will update the website often with new developments.
The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate. Register here
The toolkit includes helpful tips for using social media, customizable template posts, links to official social media properties including profile handles, hashtags and digital assets. Thank you for contributing to the success of the forum. Happy sharing!