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Join NORD this June in Houston, TX for a very special gathering!

The 2019 Living Rare, Living Stronger NORD Patient & Family Forum will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connection – in an atmosphere of support and understanding – plus fun!

Rare Impact Awards

On Saturday, June 22, 2019, in conjunction with the Living Rare, Living Stronger Forum, NORD will be hosting its annual Rare Impact Awards bringing attendees together to celebrate those who are making extraordinary contributions to the lives of rare disease patients and caregivers. The Rare Impact Awards will take place on the Saturday of the Forum and will be held at Space Center Houston, the Official Visitors Center of NASA Johnson Space Center.

NORD issued a call for nominations earlier in 2019, honorees will be announced in the coming months.


Who Should Attend?
  • Patients and their families (children are welcome!)
  • Caregivers
  • Medical professionals (clinicians, nurses, pharmacists, and more)
  • Students (medical, genetic counseling, and more)
  • Patient organization leaders and patient advocates
  • Researchers and academics
  • Industry

Key Contacts

General Inquiries: events@rarediseases.org
Sponsorship Inquiries: Alexa Moore at amoore@rarediseases.org
Media Inquiries: Laura Mullen at media@rarediseases.org