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The 2020 Living Rare Forum has been tentatively rescheduled for July 18-20. As the coronavirus pandemic evolves, NORD will continue to evaluate our plans for the conference to determine our best course of action for the safety and well-being of our community.

Living Rare, Living Stronger 2020 will be rockin’!

NORD is headed to Cleveland, Ohio for the 2020 Living Rare, Living Stronger Patient and Family Forum. What’s even more exciting–the Rare Impact Awards, included in this event, will be hosted at the iconic Rock & Roll Hall of Fame!

Check back often as more information is being released daily.

Event Overview

Living Rare, Living Stronger is an annual patient-focused conference held in a different location each year. Its agenda provides patients and families with practical tools for living their best lives with rare diseases and physicians and medical students with insights to take back to their practices and studies.

Four distinctive program tracks will present workshops geared towards:

  • Newly diagnosed patients
  • Long-term patients
  • Caregivers
  • Medical professionals and students

In addition to the sessions above, the Living Rare Forum will include a family welcome reception, a dedicated wellness room, children’s programming, and an exhibit hall to add to the excitement of this unique event!

In conjunction with the Forum, NORD will host its annual Rare Impact Awards, bringing attendees together to celebrate those making extraordinary contributions to the lives of people living with rare diseases. Join us at the Rock & Roll Hall of Fame for a night of celebration and recognition.

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: Laura Mullen at [email protected]