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Living Rare, Living Stronger NORD Patient & Family Forum


Join NORD this June in Houston, TX for a very special gathering! The 2019 Living Rare, Living Stronger|NORD Patient & Family Forum will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connection – in an atmosphere of support and understanding – plus fun!

Who is invited to the Living Rare, Living Stronger Forum?
  • Patients and their families (children are welcome!)
  • Caregivers
  • Medical professionals (clinicians, nurses, pharmacists, and more)
  • Students (medical, genetic counseling, and more)
  • Patient organization leaders and patient advocates
  • Researchers and academics
  • Industry

Event Details

More information about the Living Rare, Living Stronger Forum NORD Patient & Family Forum and the Rare Impact Awards will become available soon.

For sponsorship inquiries, please complete the form here.


Patient & Family Forum

June 21-23, 2019

Hilton Americas-Houston
1600 Lamar Street
Houston, TX 77010

Rare Impact Awards

June 22, 2019

Space Center Houston
1601 E NASA Parkway
Houston, TX 77058

Rare Impact Award Nominations

On Saturday, June 22, 2019, NORD will be hosting its annual Rare Impact Awards in Houston, TX, bringing the entire rare disease community together to celebrate those who are making extraordinary contributions to the lives of rare disease patients and caregivers.

Now we’d like your help in identifying these very special individuals and organizations. They are your family, friends, colleagues, mentors, medical team members, or even advocates that you have come to learn about through social media, in the news or at events. They are stepping up and making strides to change the status quo for rare diseases. The concrete examples you provide of their work and achievements will set this year’s nominees apart.