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Call for Speakers

Interested in presenting at the 2021 NORD Living Rare Living Stronger Patient and Family Forum? Sessions at the forum include plenary, breakout workshops, wellness sessions, and discussion groups. While all sessions are available to all attendee’s, breakout workshops are structured with a particular audience in mind while plenary sessions are for a broader audience. Opportunities to present are available for the following:

Plenary and Wellness: These sessions are designed to inspire and empower with real stories of patient and doctor collaboration, true stories of overcoming hardships and opportunities to relax and unwind.

Breakout Workshops:

  • Living Rare: Education for Beginners and Newly Diagnosed
    For those who are newly diagnosed or still learning about life with their rare disease. Workshops focus on genetic testing, clinical trials, ending isolation and more
  • Living Stronger: Education for Advanced Patients and Caregivers
    For patients and caregivers who are more advanced in their understanding of their rare disease. Workshops focus on advocacy, access, PTSD and tips to continue to live your best life
  • Loving Rare: Education and Coping strategies for the Caregiver
    For those who care for their loved ones. Workshops focus on relationships, stress management and self-care solutions and transitioning care for patients at all ages

Discussion Groups: In 2020 we offered 9 different topics for our audience to engage with like minded peers. Topics included Newly Diagnosed, Teens and Preteens, Young Adults, Parent and Non-Parent caregiving and Dating Divorce and Intimate Partner Relationships. Topic leaders will lead discussions and provide a safe open forum for all attendees to share their thoughts.

Speaker application coming soon…

Thank you to our 2020 speakers!

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: Laura Mullen at [email protected]