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![]() Aimee Adelmann, B.S. Marketing Vice President Education and Awareness, Director of Education and Outreach Cystinosis Research Network, Donate Life Northwest | ![]() Eleni Anagnostiadis, RPh, MPM Director, Professional Affairs and Stakeholder Engagement FDA | ![]() Kristen Angell Associate Director of Advocacy NORD |
![]() Donna Appell, RN Executive Director Hermansky-Pudlak Syndrome Network | ![]() Brandon G. Briery, Ph.D. Clinical Child/Pediatric Psychologist, Chief Program Officer/Executive Camp Director Children's Association for Maximum Potential (CAMP) | ![]() Maya Brown-Zimmerman, MPH Patient advocate & caregiver The Marfan Foundation |
![]() Shannon Brush, MS Caregiver Texas Central Hemohilia | ![]() Mindy (Melinda) Burnworth, PharmD, FASHP, FAzPA, BCPS Professor of Pharmacy Practice, Adult Internal Medicine / Arizona Rare Action Network Volunteer State Ambassador Midwestern University College of Pharmacy-Glendale / National Organization for Rare Disorders | ![]() Lindsay Burrage, MD, PhD Assistant Professor Baylor College of Medicine |
![]() Marni Cartelli Advocacy Committee Chair RSDSA | ![]() Hsiao-Tuan Chao, MD, Ph.D. Assistant Professor Baylor College of Medicine | ![]() Shweta Dhar, MD, MS Associate Professor Baylor College of Medicine |
![]() Debbie Drell Director of Membership Services NORD | ![]() Lisa Emrick, MD Medical Director of Neurogenetics and Assistant Professor Division of Pediatric Neurology and Developmental Neuroscience, Baylor College of Medicine and Texas Children's Hospital | ![]() Albert Freedman, Ph.D. Psychologist and Parent Independent Practice, West Chester, PA |
![]() Amy Gietzen Patient, Advocate and Public Speaker Scleroderma National Foundation | ![]() Andrew Hardwick Public Affairs Specialist Social Security Administration | ![]() Albert Hergenroeder, MD Professor of Pediatrics Baylor College of Medicine |
![]() Tiffany House, JD President Acid Maltase Deficiency Association | ![]() Becky Jennings-Damery, SHRM-CP Benefits Manager Pappas Restaurants, Inc. | ![]() Jordan Kemere, MD, MS Assistant Professor of Internal Medicine Transition Medicine Clinic, Baylor College of Medicine |
![]() Brendan Lee, MD, Ph.D. Professor and Chairman Department of Molecular and Human Genetics at Baylor College of Medicine | ![]() Andrea (Andi) Lewis, MS, CGC Clinical Instructor and Certified Genetic Counselor Baylor College of Medicine and Texas Children's Hospital | ![]() Pamela Mace, RN Executive Director Fibromuscular Dysplasia Society of America |
![]() Pilar Magoulas, MS, CGC Certified Genetic Counselor Baylor College of Medicine | ![]() Lisa Massey Program Manager NORD | ![]() Brenda Mertes President CDH Stars & Angels Inc. |
![]() Liz Mizerik, MS, CGC Certified Genetic Counselor Baylor College of Medicine/Texas Children's Hospital | ![]() Neena Niza, rEd.D. Founder and President The Jansen's Foundation | ![]() Luke Prettol Patient |
![]() Julie Raskin, MA Executive Director Congenital Hyperinsulinism International | ![]() Debra Regier, MD, PhD Director of Genomic and Metabolic Education Children's National Rare Disease Institute | ![]() Dr. Sandeep Sahay Assistant Professor Weill Cornell Medical College, Houston Methodist Hospital |
![]() Melissa Skolaski Mother and Caregiver Baylor College of Medicine | ![]() Shauna Sperou Patient, Rothmund-Thomson Syndrome Rothmund-Thomson Syndrome Foundation | ![]() Reid Sutton, MD Professor of Molecular & Human Genetics Baylor College of Medicine & Texas Children's Hospital |
![]() Deborah Tamura, MS, RN, APNG Research Nurse, DNA Repair Section, LCBG Branch NIH/NCI/CCR/LCBG/DNA Repair Section | ![]() Kelly Trout, BSN, RN Director, Research and Medical Advocacy International WAGR Syndrome Association | ![]() Lisa Wang, MD Associate Professor Baylor College of Medicine |
![]() Michael Wangler, MD Assistant Professor Baylor College of Medicine | ![]() Monica Weldon President/CEO Bridge the Gap - SYNGAP Education and Research Foundation | ![]() Mary Jane Williams Executive Director Family to Family Network |