Thank you for your interest in presenting – the speaker submission portal is now closed.
 Christopher Anselmo Market Intelligence Manager Muscular Dystrophy Association |  Deborah Ayers President The Avalon foundation |  Kelly Barendt Patient |
 Maria Bellefeuille Illinois Volunteer State Ambassador; Rare Action Network NORD |  Kathleen Bogart, PhD Assoc. Professor and Director of the Disability and Social Interaction Lab Oregon State University |  Philip John Brooks, PhD Program Director Office of Rare Diseases Research National Center for Advancing Translational Sciences NIH |
 Colleen Brunetti, M.Ed., C.H.C. Patient Advocate, Author |  Michelle Campbell, PhD Clinical Analyst Stakeholder Engagement and Clinical Outcomes FDA, Center for Drug Evaluation and Research |  Micheal Chappell Caregiver |
 Julie Corder, RN, MSN, CNP Nurse Practitioner Pediatric Complex Care Cleveland Clinic |  Meghan Debenedictis, MS, CGC, MEd Licensed, Certified Genetic Counselor Cole Eye Institute, Cleveland Clinic |  Rishi Desai, MD, MPH Chief Medical Officer Osmosis |
 Rasheera Dopson Blogger, Beauty with a Twist and CEO The Dopson Foundation |  Katie Dykman Social Worker Huntington's Disease Society of America Center of Excellence at Cleveland Clinic |  David Fajgenbaum, MD, MBA, MSc, FCPP Co-founder and Executive Director of the Castleman Disease Collaborative Network (CDCN), Assistant Professor of Medicine in Translational Medicine & Human Genetics at the University of Pennsylvania, and Associate Director, Patient Impact for the Penn Orphan Disease Center |
 Raenette Franco Founder & CEO Compassion Works Medical |  Amber Freed Co-Founder & CEO Milestones for Maxwell & SLC6A1 Connect, Caregiver |  Keisha Greaves Owner/Founder Girls Chronically Rock |
 Nicolas Hancart Public Affairs Manager-STABLE Ohio Treasurer of State |  Shannah Hudson Founder & President , Caregiver Mississippi Metabolics Foundation |  Carly Khan, PhD, RN, MPH Program Officer Patient Centered Outcomes Research Institute (PCORI) |
 Orah Lasko Caregiver, Fundraising Chair Foundation for USP7-Related Diseases |  Andrew MacDowell Co Founder and Chief Operating Officer Offscrip |  Kim l. McBride, MD, MS -Investigator, Center for Cardiovascular and Pulmonary Research, The Research Institute, Nationwide Children’s Hospital: Assistant Professor, Department of Pediatrics, The Ohio State University College of Medicine |
 Mary McGowan Executive Director The Myositis Association |  Beth McKenna Caregiver, Fundraiser and Advocate Childrens Tumor Foundation |  Nicholas Meyering Board Member Congenital Central Hypoventilation Syndrome Network |
 Marvin Natowicz, MD, PhD Professor of Pathology, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University; Physician at Cleveland Clinic |  Effie Parks Caregiver, Host Once Upon a Gene |  Amye Phinazee Patient |
 Mike Porath Founder & CEO The Mighty |  Tejashri Purohit-Sheth, M.D., FACAAI, CQIA, CAPT, USPHS Director, Division of Clinical Evaluation and Pharmacology/Toxicology, Office of Tissue and Advanced Therapies, Center for Biologics Evaluation and Research U.S. Food & Drug Administration |  Seth Rotberg Co- Founder, Head of Strategy & Engagement Our Odyssey |
 Tracy Shaw Caregiver Maddie's Herd |  Darlene Shelton President, Founder Danny's Dose Alliance |  Samantha Smith President Gastoparesis Patient Association for Cures and Treatments, Inc. |
 Linda Hampton Starnes Parent Florida Family Leaders Network |  Mac Starnes Self-Advocate Florida Family Leaders Network |  Jennelle Stephenson Patient |
 John Tisdale, MD MD Senior Investigator, Molecular and Clinical Hematology Branch NIH/NHLBI |  Teonna Woolford Patient Advocate Sickle Cell Community Consortium |  Matthew Zachary Founder and CEO Offscrip and Founder, Stupid Cancer |
