Managing Your Disease
When you are navigating a rare disease, you need concrete help today and in the future. That’s why we are here.
Help Getting a Diagnosis
We help you get a diagnosis by connecting you with access to resources and also providing financial assistance for testing.
Getting Information
You can gain knowledge through our on-line Rare Disease Resource Center, which contains educational videos, free webinars, fact sheets, infographics, and other helpful materials. It is designed to help patients, caregivers, students, professionals, and the public.
Start using NORD’s Resource Library
Help Finding a Medical Expert
You can access a database of rare disease experts as well as primary physicians and other healthcare providers.
Search for a rare disease medical expert now
Help Finding a Clinical Trial
You can receive up-to-date information on clinical trials that NORD shares with patients and medical providers.
Explore clinical trials
Help Getting Patient Financial Assistance
You can find financial help with our Patient Assistance Program in areas such as obtaining medications and assisting with insurance premiums and co-pays.
Find a patient assistance program
Help Finding a Support Organization
You can find a patient group to help navigate your specific disease.
Search for a rare disease organization