Come and be part of the ANGEL AID's first-ever Rare Men's Wellness Retreat! You are invited to join this exclusive group as a patient or caregiver. The retreat will take …
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Uplifting Athletes is excited to invite rare individuals and families to join us for a one-of-a-kind game day at Medlar Field in State College, PA on Sunday, June 11 at …
APFED’s EOS Connection 2023 Patient Education Conference on Eosinophil-Associated Diseases is taking place from June 30-July 1 in Denver and online. Preconference activities will be held June 29. Discounted registration …
The National Scleroderma Foundation will celebrate their 25th anniversary at the 2023 Kids Get Scleroderma Too Conference and 2023 National Scleroderma Conferences from July 14-16. Don’t miss out on meeting …
The ARRE Foundation hosts the ASXL Research Symposium annually for researchers, clinician-scientists, and other professionals who are studying aspects of the ASXL genes and ASXL syndromes. This year's ASXL Research …
Wake Up Narcolepsy (WUN) presents the 2023 Wake Up Narcolepsy National Conference in Rochester, Minnesota! Join WUN on September 9th, either in person or online to hear from leading experts …
The National Foundation for Ectodermal Dysplasias (NFED) is hosting Advocacy Day on Capitol Hill to advocate for the Ensuring Lasting Smiles Act (ELSA) to federal legislators in Washington, D.C. ELSA …
The 2023 CMT Patient & Research Summit on Saturday, November 4 will offer life-improving presentations on living well with CMT and will provide a comprehensive update on STAR research. Spend …
