NORD Member Events


APFED’s EOS Connection 2023

Hyatt Regency Aurora-Denver 13200 East 14th Place, Aurora, CO, United States

APFED’s EOS Connection 2023 Patient Education Conference on Eosinophil-Associated Diseases is taking place from June 30-July 1 in Denver and online. Preconference activities will be held June 29. Discounted registration …

ASXL Research Symposium

Simmons University 300 Fenway, Boston, MA, United States

The ARRE Foundation hosts the ASXL Research Symposium annually for researchers, clinician-scientists, and other professionals who are studying aspects of the ASXL genes and ASXL syndromes. This year's ASXL Research …

NFED Advocacy Day

The National Foundation for Ectodermal Dysplasias (NFED) is hosting Advocacy Day on Capitol Hill to advocate for the Ensuring Lasting Smiles Act (ELSA) to federal legislators in Washington, D.C. ELSA …