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The Natural History Of Metachromatic Leukodystrophy
– The Team

Pamela K. Gavin, MBA
Chief Strategy Officer at NORD
Vanessa Boulanger, MSc, Principal Investigator
Director of Research Programs at NORD
Danielle Boyce, MPH
Associate Director, Research Programs at NORD

Family and Caregiver Advisory Committee Members

Sarah CornellMLD parent
Derek GavinMLD parent
Maria Kefalas, PhDMLD parent
Sonal Patel, MDMLD parent
Susan SullivanMLD parent


Industry and Clinician Advisory Committee Members

Laura Adang, MD, PhD – Children’s Hospital of Philadelphia
Giovanna Devercelli, PhD – Takeda
Maria Escolar, MD – Children’s Hospital of Pittsburgh
Natalia Gomez-Ospina, MD, PhD – Pediatric Translational Medicine, Stanford University
Mike Hale, PhD – Takeda
Eric J. Mallack, MDWeill-Cornell Medicine
Leslie Meltzer, PhD – Orchard
Gary Romano, MD, PhD – Passage Bio
Dorothy Romanus, MSc, PhD – Takeda
David Whiteman, MDTakeda