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Events


All NORD and Member Organization Events

Organizational members who would like to post an event on this page may submit it here.

Rare Kidney Stone Patient Meeting & Walk from Jun 27, 2014 06:00 PM to Jun 29, 2014 12:00 PM Ann & Robert H. Luri Children's Hospital, Chicago, Illinois,
The Oxalosis & Hyperoxaluria Foundation (OHF)hosts the 2014 Patient Meeting & Walk in Chicago Jun 27-29, 2014.
7th Annual FMDSA Conference May 16, 2014 from 05:30 PM to 05:00 PM Cleveland, OH,
The 7th Annual Fibromuscular Dysplasia Society of America Conference will be held in Cleveland, OH, May 16-17.
PRISMS 8th International Conference from Jul 31, 2014 12:00 AM to Aug 03, 2014 12:00 AM St. Louis, MO,
PRISMS 8th International Conference, “Building Bridges of Hope” will be held July 31-Aug 3 in St. Louis, MO.
PSC Partners 10th Annual Conference in Denver from Apr 25, 2014 08:00 AM to Apr 27, 2014 12:00 AM Denver, Colorado,
PSC Partners Seeking a Cure announces its tenth annual conference for primary sclerosing cholangitis (PSC) in Denver, Colorado April 25-27, 2014.
2014 International Pulmonary Hypertension Conference from Jun 20, 2014 12:00 AM to Jun 22, 2014 12:00 AM Indianapolis, IN,
The 2014 International Pulmonary Hypertension Conference will be held in Indianapolis, Indiana from June 20-22, 2014.
HHT Foundation International from Jul 18, 2014 12:10 PM to Jul 20, 2014 12:10 PM Santa Clara, CA,
The Foundation has announced that its 17th National Patient and Family Conference will be held July 18-20, 2014 in Santa Clara, CA.
2014 MDF Annual Conference from Sep 12, 2014 12:00 AM to Sep 14, 2014 12:00 AM WA, DC,
The annual patient conference for myotonic dystrophy patients, researchers, physicians and industry will be held from Sept 12-14, 2014.
International Pompe Day Apr 15, 2014 12:00 AM Everywhere,
International Pompe Day is April 15, 2014. The goal is to foster international awareness of Pompe Disease.
Role of Immune Tolerance Induction Public Workshop Jun 09, 2014 from 08:00 AM to 05:00 PM White Oak Conference Center 10903 New Hampshire Ave Building 31, Rm 1503 Silver Spring, MD 20993,
The FDA and NORD are co-hosting this public workshop on June 9, 2014 at the White Oak Conference Center in Silver Springs, MD.
1st Lymphangiomatosis & Gorham's Disease Patient-Family Conference from Jun 13, 2014 12:00 PM to Jun 14, 2014 09:00 PM Sheraton Suites Hotel - Dallas,
The Lymphangiomatosis & Gorham's Disease Alliance (LGDA) will hold its inaugural Patient-Family Conference June 13 & 14, 2014, at the Sheraton Suites Market Center in Dallas.
Moebius Syndrome Foundation from Jul 18, 2013 01:00 PM to Jul 20, 2013 01:00 PM Bethesda, MD,
The next Moebius Syndrome Conference will take place July 18-20, 2014 in Bethesda, MD.
36th Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference from Sep 19, 2014 04:00 PM to Sep 20, 2014 05:30 PM DoubleTree by Hilton Detroit-Dearborn,
The 36th Annual AGSD Patient/Family/Professional Conference will be held Sept. 19-20, 2014 at the DoubleTree by Hilton Detroit-Dearborn.
2014 World TSC Conference from Jul 03, 2014 12:00 PM to Jul 06, 2014 12:00 PM Omni Shoreham Hotel in Washington, DC,
The Tuberous Alliance (TS Alliance) announces the 2014 World Tuberous Sclerosis Complex (TSC) Conference will be July 3-6, 2014 in Washington, DC.

 
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