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NORD Praises SSA for Expanding Program to Help People with Devastating Diseases
Compassionate Allowances Program Provides Expedited Disability Review for Patients with Severely Disabling Diseases
FDA, Medical Device Industry and NORD Announce New Public-Private Partnership
First-ever PPP Created to Focus Exclusively on Advancing Medical Device Regulatory Science
NORD, EURORDIS and CORD Release a Joint Declaration of 10 Key Principles for Rare Disease Patient Registries
NORD, CORD, and EURORDIS have released a joint declaration on common principles regarding Rare Disease Patient Registries.
Rare Disease Day Project Being Presented at NSGC Annual Educational Conference
Genetic Counseling Graduate Student Worked with NORD to Create High School Curriculum
HIGH SCHOOL SWIM TEAM SHOWS SUPPORT FOR NORD!
The White Plains (NY) High School Girls Swimming and Diving Team showed support for rare disease patients by conducting a Swim-A-Thon fundraiser.
Can Our Society Afford to Provide Treatments for People with Rare Diseases?
A Medical Adviser to the National Organization for Rare Disorders (NORD) Responds to this Question
Images From the Philadelphia Member Organization Regional Meeting
In September NORD conducted our fourth in a series of regional member organization meetings.
Struggling With Undiagnosed Condition, Woman Turns Her Thoughts to Others
Delayed diagnosis remains a serious issue. This young woman channeled her frustration into helping others.
Advocacy Alert: August 14, 2012
When Congress returns from its summer recess on September 10, you'll be receiving an invitation from NORD to join us in letting Congress know this is not acceptable.
NORD Applauds Congress for Bipartisan Action on New Law
Many Members of Congress played key roles in shaping the FDA Safety and Innovation Act.

 
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