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January 18, 2018

TOPIC: Events, Get Involved, Medical

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Posted by Christina Jensen

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader, Harjot Randhawa, was in attendance and wrote the excellent article below… Read More

January 16, 2018

TOPIC: Advocacy, Get Involved, Press Releases

NORD Launches 7,000 Mile Rare Movement

Posted by Laura Mullen
 THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) LAUNCHES 7,000 MILE RARE MOVEMENT CHALLENGING AMERICANS TO CHART 7,000 MILES DURING MONTH OF FEBRUARY
Read More

January 10, 2018

TOPIC: Advocacy, Get Involved

Your Help is Needed to #SaveCHIP

Posted by Christina Jensen
Today, advocates across the country are joining together to #SaveCHIP!
The Children’s… Read More

January 9, 2018

TOPIC: Events, Get Involved

Nominations for the Rare Impact Awards Close Friday, January 12

Posted by Christina Jensen
Do you know a person or company making a difference in the fight against rare diseases? We want to hear about them! Submit a nomination for the 2018 Rare Impact Awards by this coming Friday, January 12Read More

January 5, 2018

TOPIC: Advocacy, Featured News

Letter from NORD to Majority Leader Mitch McConnell and Minority Leader Chuck Schumer in support of Alex Azar’s candidacy

Posted by Laura Mullen

Washington, D.C. – January 5, 2018 – today, NORD sent the following letter to Majority Leader Mitch McConnell and Minority Leader Chuck Schumer in support of Alex Azar’s candidacy for Secretary of the Department of Health and Human Services (HHS):

 

Dear Senators,

On behalf of the National Organization for Rare Disorders (NORD), which represents the 30 million Americans with a rare disease, I am writing to support the… Read More