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July 28, 2015

TOPIC: Advocacy, Featured News, Get Involved, Sticky Posts for Advocate

Miss Iron County Supports Rare Disease Advocacy and Awareness

Posted by Christina Jensen

Recently, NORD was happy to receive a Facebook message from a young woman named Angelia Benson. She expressed interest in using NORD’s logo in a parade as part of her competition to become Miss Utah.  We were thrilled to learn that Angelia, who is the reigning Miss Iron County Utah, was interested in rare diseases and in using her… Read More

July 27, 2015

TOPIC: Featured News, Sticky Posts for Homepage

Member Spotlight: LGDA

Posted by Christina Jensen
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The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham’s disease by promoting research that will identify effective treatments and ultimately a cure for these diseases. The Lymphangiomatosis & Gorham’s Disease (LGD) Alliance is a non-profit foundation dedicated to patient support, advocacy, and the finding of effective treatments and cures for those affected… Read More