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July 30, 2015

TOPIC: Advocacy

NORD Files Amicus Brief to Protect Drug Development Incentives in the Orphan Drug Act

Posted by Jennifer Huron

Washington, D.C., July 30, 2015 – The National Organization for Rare Disorders (NORD) has filed an amicus brief in the D.C. Circuit of the U.S. Court of Appeals, stating that a recent Food and Drug Administration (FDA) decision has the potential to impede the development of new treatments to help patients with rare diseases. NORD is the leading… Read More

July 28, 2015

TOPIC: Advocacy, Featured News, Get Involved, Sticky Posts for Advocate

Miss Iron County Supports Rare Disease Advocacy and Awareness

Posted by Christina Jensen

Recently, NORD was happy to receive a Facebook message from a young woman named Angelia Benson. She expressed interest in using NORD’s logo in a parade as part of her competition to become Miss Utah.  We were thrilled to learn that Angelia, who is the reigning Miss Iron County Utah, was interested in rare diseases and in using her… Read More