Scroll
To Top

May 24, 2018

TOPIC: Featured News, Press Releases, Research

New Research Funding Opportunities Available from NORD

Posted by Laura Mullen

All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018

 

Washington, D.C., May 24, 2018 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, announces the availability of new research grants to support the study… Read More

May 22, 2018

TOPIC: Advocacy, Featured News

NORD Issues Statement Regarding House Passage of the Right to Try Act (S.204)

Posted by Christina Jensen
Washington, D.C., May 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement following today’s passage of the Right to Try Act (S.204) in the House of Representatives:
“Today, the House of Representatives passed the Right to Try Act (S.204). We at the National… Read More

May 21, 2018

TOPIC: Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research

Save the Date for NORD’s 2018 Rare Summit

Posted by Christina Jensen

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.


Rare Diseases &… Read More

May 15, 2018

TOPIC: Featured News

NORD statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs

Posted by Laura Mullen

The National Organization for Rare Disorders (NORD) today issued the following statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs:

Patients with rare diseases are frequently disproportionately affected by high drug prices.  Rare diseases tend to be chronic and medications can be needed for the life… Read More

May 10, 2018

TOPIC: Events, Featured News, Get Involved

Watch LIVE: NORD’s 35th Anniversary & Rare Impact Awards Celebration

Posted by Christina Jensen
NORD-35thAnniv-StickyPost-238x205-WatchLive

NORD’s 35th Anniversary Celebration presenting the Rare Impact Awards is only one week away, happening next Thursday, May 17, at the Andrew W. Mellon Auditorium in Washington, D.C. If you are not able to attend in person, please join us for a special webcast of the event using Facebook Live!

How to Watch:

  1. On Thursday, May 17 at… Read More